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Evaluation of a hybrid telehealth care pathway for patients with axial spondyloarthritis including self-sampling at home: results of a longitudinal proof-of-concept mixed-methods study (TeleSpactive)

Λεπτομέρειες βιβλιογραφικής εγγραφής
Τίτλος: Evaluation of a hybrid telehealth care pathway for patients with axial spondyloarthritis including self-sampling at home: results of a longitudinal proof-of-concept mixed-methods study (TeleSpactive)
Συγγραφείς: Labinsky, Hannah, May, Susann, Boy, Katharina, von Rohr, Sophie, Grahammer, Manuel, Kuhn, Sebastian, Rojas, Jessica, (Eimer) Vogt, Ekaterina, Heinze, Martin, Schett, Georg, Muehlensiepen, Felix, Knitza, Johannes
Πηγή: http://lobid.org/resources/99370674188806441#!, 44(6):1133-1142.
Έτος έκδοσης: 2024
Συλλογή: Publisso (ZB MED-Publikationsportal Lebenswissenschaften)
Θεματικοί όροι: Surveys and Questionnaires [MeSH], Telemedicine [MeSH], Female [MeSH], Self Care/methods [MeSH], Adult [MeSH], Humans [MeSH], Longitudinal Studies [MeSH], Middle Aged [MeSH], Surveys and questionnaires, Axial spondyloarthritis, axSpA, Male [MeSH], Axial Spondyloarthritis/therapy [MeSH], Electronic patient-reported outcome, Treat-to-target, ePRO, Patient Opinion, Mobile Applications [MeSH], Proof of Concept Study [MeSH], Axial Spondyloarthritis/diagnosis [MeSH], Shared decision-making
Περιγραφή: AbstractPatients with axial spondyloarthritis (axSpA) require close monitoring to achieve the goal of sustained disease remission. Telehealth can facilitate continuous care while relieving scarce healthcare resources. In a mixed-methods proof-of-concept study, we investigated a hybrid telehealth care axSpA pathway in patients with stable disease over 6 months. Patients used a medical app to document disease activity (BASDAI and PtGA bi-weekly, flare questionnaire weekly). To enable a remote ASDAS-CRP (TELE-ASDAS-CRP), patients used a capillary self-sampling device at home. Monitoring results were discussed and a decision was reached via shared decision-making whether a pre-planned 3-month on-site appointment (T3) was necessary. Ten patients completed the study, and eight patients also completed additional telephone interviews. Questionnaire adherence was high; BASDAI (82.3%), flares (74.8%) and all patients successfully completed the TELE-ASDAS-CRP for the T3 evaluation. At T3, 9/10 patients were in remission or low disease activity and all patients declined the offer of an optional T3 on-site appointment. Patient acceptance of all study components was high with a net promoter score (NPS) of +50% (mean NPS 8.8 ± 1.5) for self-sampling, +70% (mean NPS 9.0 ± 1.6) for the electronic questionnaires and +90% for the T3 teleconsultation (mean NPS 9.7 ± 0.6). In interviews, patients reported benefits such as a better overview of their condition, ease of use of telehealth tools, greater autonomy, and, most importantly, travel time savings. To our knowledge, this is the first study to investigate a hybrid approach to follow-up axSpA patients including self-sampling. The positive results observed in this scalable proof-of-concept study warrant a larger confirmatory study.
Τύπος εγγράφου: article in journal/newspaper
Γλώσσα: English
Relation: https://repository.publisso.de/resource/frl:6491754; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11108867/
DOI: 10.1007/s00296-024-05581-w
Διαθεσιμότητα: https://repository.publisso.de/resource/frl:6491754
https://doi.org/10.1007/s00296-024-05581-w
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11108867/
Rights: https://creativecommons.org/licenses/by/4.0/
Αριθμός Καταχώρησης: edsbas.7138C62C
Βάση Δεδομένων: BASE
Περιγραφή
DOI:10.1007/s00296-024-05581-w