Academic Journal
Are all cancer survivors included when using electronically administered patient reported outcomes in primary healthcare cancer rehabilitation? A cross-sectional study
| Τίτλος: | Are all cancer survivors included when using electronically administered patient reported outcomes in primary healthcare cancer rehabilitation? A cross-sectional study |
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| Συγγραφείς: | Sine Rossen, Mette Thønnings Sandager, Dorte Thoning Hofland, Claus Vinther Nielsen, Thomas Maribo |
| Πηγή: | J Patient Rep Outcomes Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-12 (2024) Rossen, S, Sandager, M T, Hofland, D T, Nielsen, C V & Maribo, T 2024, 'Are all cancer survivors included when using electronically administered patient reported outcomes in primary healthcare cancer rehabilitation? A cross-sectional study', Journal of Patient-Reported Outcomes, vol. 8, no. 1, 67, pp. 67. https://doi.org/10.1186/s41687-024-00753-5 |
| Στοιχεία εκδότη: | Springer Science and Business Media LLC, 2024. |
| Έτος έκδοσης: | 2024 |
| Θεματικοί όροι: | PRO, Male, Adult, Neoplasms/rehabilitation, Cancer Survivors, Neoplasms, Humans, Electronic Health Records, Primary Health Care/statistics & numerical data, Patient Reported Outcome Measures, 10. No inequality, Patient reported outcomes, Aged, Cancer rehabilitation, Primary Health Care, Research, Middle Aged, Inequality in health, 3. Good health, Cross-Sectional Studies, Socioeconomic Factors, Female, Electronic Health Records/statistics & numerical data, Public aspects of medicine, RA1-1270, Cancer Survivors/statistics & numerical data |
| Περιγραφή: | Background Patient reported outcomes (PROs) are being used frequently in clinical practice. PROs often serve several purposes, such as increasing patient involvement, assessing health status, and monitoring and improving the quality-of-care at an aggregated level. However, the lack of representative PRO-data may have implications for all these purposes. This study aims to assess the association of non-administration of (not sending an electronic invite to PRO) and non-response to (not responding to PRO) electronically administered PROs with social inequality in a primary healthcare cancer rehabilitation setting. Furthermore, it examines whether the workflows surrounding PRO have an impact on non-administration and non-response. Methods This is a cross sectional study using routinely collected data from electronic health records and registers including cancer survivors (CSs) over 18 years booked for an initial consultation in a primary healthcare cancer rehabilitation setting using PROs for systematic health status assessment. During the study period two different PRO platforms were used, each associated with different workflows. Non-administration and non-response rates were calculated for sociodemographic characteristics for each PRO platform. Crude and adjusted odds ratios were calculated using univariate and multivariate logistic regression. Results In total, 1868 (platform 1) and 1446 (platform 2) CSCSs were booked for an initial consultation. Of these, 233 (12.5%) (platform 1) and 283 (19.6%) (platform 2) were not sent a PRO (non-administration). Among those who received a PRO, 157 (9.6%) on platform 1 and 140 (12.0%) on platform 2 did not respond (non-response). Non-administration of and non-response to PROs were significantly associated with lower socioeconomic status. Moreover, the workflows surrounding PROs seem to have an impact on non-inclusion in and non-response to PROs. Conclusions Non-administration of and non-response to PROs in clinical practice is associated with determinants of social inequality. Clinical workflows and the PRO platforms used may potentially worsen this inequality. It is important to consider these implications when using PROs at both the individual and aggregated levels. A key aspect of implementing PROs in clinical practice is the ongoing focus on representativeness, including a focus on monitoring PRO administration and response. |
| Τύπος εγγράφου: | Article Other literature type |
| Γλώσσα: | English |
| ISSN: | 2509-8020 |
| DOI: | 10.1186/s41687-024-00753-5 |
| Σύνδεσμος πρόσβασης: | https://pubmed.ncbi.nlm.nih.gov/38976222 https://doaj.org/article/b486559164344e429143adea69ab898d http://www.scopus.com/inward/record.url?scp=85197734858&partnerID=8YFLogxK https://pure.au.dk/portal/en/publications/dc273283-7a9b-4a1a-af1c-5dffa1ac5ddc https://doi.org/10.1186/s41687-024-00753-5 |
| Rights: | CC BY |
| Αριθμός Καταχώρησης: | edsair.doi.dedup.....d02e79743a66cca3f3811ef3e03c02d7 |
| Βάση Δεδομένων: | OpenAIRE |
| ISSN: | 25098020 |
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| DOI: | 10.1186/s41687-024-00753-5 |