Academic Journal
Working with hope: Learning from bereaved parents.
| Τίτλος: | Working with hope: Learning from bereaved parents. |
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| Συγγραφείς: | Katz NT; Victorian Paediatric Palliative Care Program, The Royal Children's Hospital Melbourne, Melbourne, Victoria, Australia.; Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.; Clinical Paediatrics Group, Murdoch Children's Research Institute, Melbourne, Victoria, Australia., Hynson JL; Victorian Paediatric Palliative Care Program, The Royal Children's Hospital Melbourne, Melbourne, Victoria, Australia.; Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia., Gillam L; Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.; Children's Bioethics Centre, The Royal Children's Hospital Melbourne, Melbourne, Victoria, Australia. |
| Πηγή: | Palliative & supportive care [Palliat Support Care] 2026 Sep 28; Vol. 24, pp. e239. Date of Electronic Publication: 2026 Sep 28. |
| Τύπος έκδοσης: | Journal Article |
| Γλώσσα: | English |
| Στοιχεία περιοδικού: | Publisher: Cambridge University Press Country of Publication: England NLM ID: 101232529 Publication Model: Electronic Cited Medium: Internet ISSN: 1478-9523 (Electronic) Linking ISSN: 14789515 NLM ISO Abbreviation: Palliat Support Care Subsets: MEDLINE |
| Imprint Name(s): | Original Publication: Cambridge : Cambridge University Press, c2003- |
| Ιατρικοί όροι (MeSH): | Parents*/psychology , Hope* , Bereavement*, Palliative Care/psychology ; Interviews as Topic/methods ; Humans ; Male ; Female ; Adolescent ; Infant ; Child ; Child, Preschool ; Qualitative Research ; Adult ; Infant, Newborn ; Attitude to Death ; Adaptation, Psychological |
| Περίληψη: | Objectives: The complexity of hope in serious childhood illness can be underestimated in clinical practice. We sought to explore the lived experience of hope among bereaved parents to help clinicians interpret and engage with parents' varied and changing expressions of hope over the course of their child's illness. Methods: Semi-structured interviews were conducted with bereaved parents of children known to a statewide pediatric palliative care service who died aged 16 years or younger from any medical condition. A phenomenological framework underpinned the study, and reflexive thematic analysis was employed. Institutional ethics approval was obtained. Results: Twenty bereaved parents, including 6 fathers, participated. Their children ranged in age from 1 day to 16 years. Overall, parents' hopes were personal, multidimensional, and changed over time. Four main themes emerged: (1) Objects of hope, including survival, experiences in life, day-to-day normality, memory-making, and experiences at end-of-life; (2) patterns of hope, including hope's dynamic nature, alignment between parents, and hope and prognostic awareness; (3) factors that influence hope, including hope's intrinsic nature, clinical information, and clinician communication; and (4) the value of hope, both positive and negative. Significance of Results: The study's findings support existing research describing hope as multidimensional, dynamic, and potentially coexisting with prognostic awareness. We share new insights into how clinicians can work with parental hope in ways that can be both beneficial and detrimental. Additionally, we describe how some parents may perceive hope as potentially harmful. |
| Contributed Indexing: | Keywords: communication; death; dying; hope; pediatric palliative care; prognostic awareness; serious illness |
| Entry Date(s): | Date Created: 20260928 Date Completed: 20260928 Latest Revision: 20260928 |
| Update Code: | 20260928 |
| DOI: | 10.1017/S1478951526103678 |
| PMID: | 42803432 |
| Βάση Δεδομένων: | MEDLINE |
| ISSN: | 1478-9523 |
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| DOI: | 10.1017/S1478951526103678 |