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Through Parents' Eyes: Perspectives on Child Development and Family Experience During ESDM Intervention.

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Τίτλος: Through Parents' Eyes: Perspectives on Child Development and Family Experience During ESDM Intervention.
Συγγραφείς: Latrèche K; Department of Psychiatry, Faculty of Medicine, University of Geneva, Geneva, Switzerland.; Fondation Pôle Autisme, Geneva, Switzerland., Journal F; Department of Psychiatry, Faculty of Medicine, University of Geneva, Geneva, Switzerland.; Fondation Pôle Autisme, Geneva, Switzerland., Godel M; Division of Adult Psychiatry, Department of Psychiatry, University Hospitals of Geneva, Geneva, Switzerland., Franchini M; Faculty of Psychology and Educational Sciences, University of Geneva, Geneva, Switzerland., Kojovic N; Department of Psychiatry, Faculty of Medicine, University of Geneva, Geneva, Switzerland.; Fondation Pôle Autisme, Geneva, Switzerland., Cimasoni D; Parent Collaborator and Community Contributor, Geneva, Switzerland., Czajkowski M; Parent Collaborator and Community Contributor, Geneva, Switzerland., Delieutraz L; Parent Collaborator and Community Contributor, Geneva, Switzerland., Laubu C; Parent Collaborator and Community Contributor, Geneva, Switzerland., Schaer M; Department of Psychiatry, Faculty of Medicine, University of Geneva, Geneva, Switzerland.; Fondation Pôle Autisme, Geneva, Switzerland.
Πηγή: Autism research : official journal of the International Society for Autism Research [Autism Res] 2026 Sep; Vol. 19 (9), pp. e70318. Date of Electronic Publication: 2026 Jul 25.
Τύπος έκδοσης: Journal Article
Γλώσσα: English
Στοιχεία περιοδικού: Publisher: John Wiley & Sons, Inc Country of Publication: United States NLM ID: 101461858 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1939-3806 (Electronic) Linking ISSN: 19393806 NLM ISO Abbreviation: Autism Res Subsets: MEDLINE
Imprint Name(s): Original Publication: Hoboken, NJ : John Wiley & Sons, Inc.
Ιατρικοί όροι (MeSH): Parents*/psychology , Child Development*/physiology , Early Intervention, Educational*/methods , Autism Spectrum Disorder*/therapy , Autism Spectrum Disorder*/psychology, Parenting/psychology ; Humans ; Male ; Female ; Child, Preschool ; Infant ; Surveys and Questionnaires ; Adult ; Parent-Child Relations
Περίληψη: Early intensive intervention for autistic children aims to support developmental progress in social and communication domains. Although outcomes are typically assessed using standardized measures of child development, parental perspectives during early intervention remain largely understudied. Here, we examined parental perceptions after 6 months of intensive Early Start Denver Model (ESDM) intervention. Participants were parents of 104 autistic children aged 1.3-3.5 years enrolled in an individualized therapist-delivered ESDM intervention following diagnosis confirmation. Child development was assessed at entry (baseline) and 6 months later (follow-up). At follow-up, parents completed an 18-item questionnaire capturing their perceptions of child progress across twelve domains as well as changes in parenting skills, personal well-being, and family life. Descriptive analyses, item-level correlations, and principal component analysis (PCA) were conducted to identify underlying components. Parents generally indicated improvements across all domains, with aggravation rarely reported. PCA revealed three intercorrelated components (Social Communication, Nonverbal Social Engagement, and Positive Parental Experience), each showing distinct associations with child or parent measures. Parental perceptions of child development were strongly correlated with standardized developmental assessments, particularly in social communication. While parents also reported enhanced parenting skills and positive personal and familial impacts, these experiences were not associated with child developmental gains but with parental education and the number of siblings in the household. These findings underscore the importance of integrating parental perspectives alongside clinical assessments when evaluating early intervention outcomes. Future research should investigate how parental perceptions evolve over longer periods and how they may inform family-centered care and post-intervention support.
(© 2026 The Author(s). Autism Research published by International Society for Autism Research and Wiley Periodicals LLC.)
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Grant Information: 190084 Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung; 202235 Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung; 212653 Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung; 51NF40-185897 National Centre of Competence in Research (NCCR) Synapsy; Fondation Privée des Hôpitaux Universitaires de Genève; Fondation Pôle Autisme
Contributed Indexing: Keywords: Early Start Denver Model; autism spectrum disorder; children; early intervention; parental perspectives; parenting skills; well‐being
Entry Date(s): Date Created: 20260725 Date Completed: 20260923 Latest Revision: 20260925
Update Code: 20260925
PubMed Central ID: PMC13599708
DOI: 10.1002/aur.70318
PMID: 42500921
Βάση Δεδομένων: MEDLINE
Περιγραφή
ISSN:1939-3806
DOI:10.1002/aur.70318