Enablers to successful patient and public involvement in Palliative Care Research: Qualitative perspectives of public members and Program Coordinators.

Λεπτομέρειες βιβλιογραφικής εγγραφής
Τίτλος:	Enablers to successful patient and public involvement in Palliative Care Research: Qualitative perspectives of public members and Program Coordinators.
Συγγραφείς:	Wilson M; Department of Medicine, University of Melbourne, Australia.; Palliative Nexus, St Vincent's Hospital, Melbourne, Australia., Philip J; Department of Medicine, University of Melbourne, Australia.; Palliative Nexus, St Vincent's Hospital, Melbourne, Australia., Hofmeyer C; Voices for Palliative Care, Australia., Paluch A; Voices for Palliative Care, Australia., Panozzo S; Department of Medicine, University of Melbourne, Australia., Hudson P; Department of Medicine, University of Melbourne, Australia.; Centre for Palliative Care, St Vincent's Hospital, Melbourne, Australia., Collins A; Department of Medicine, University of Melbourne, Australia.; Palliative Nexus, St Vincent's Hospital, Melbourne, Australia.
Πηγή:	Palliative medicine [Palliat Med] 2026 Sep; Vol. 40 (8), pp. 1196-1203. Date of Electronic Publication: 2026 May 25.
Τύπος έκδοσης:	Journal Article
Γλώσσα:	English
Στοιχεία περιοδικού:	Publisher: SAGE Publications Country of Publication: England NLM ID: 8704926 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1477-030X (Electronic) Linking ISSN: 02692163 NLM ISO Abbreviation: Palliat Med Subsets: MEDLINE
Imprint Name(s):	Publication: London : SAGE Publications Original Publication: London : New York, NY : Cambridge University Press, North American distributors, Edward Arnold ; c1987-
Ιατρικοί όροι (MeSH):	Palliative Care/organization & administration , Health Services Research/organization & administration , Community Participation* , Patient Participation*, Humans ; Qualitative Research ; Australia ; Female ; Male ; United Kingdom ; Middle Aged ; Adult ; Interviews as Topic ; Aged
Περίληψη:	Background: Despite policy and health service imperatives for public involvement to be embedded within palliative care research, this practice is not commonplace. Few empirical studies have sought to explore and evaluate models of public involvement for palliative care. Aim: To explore experiences of public involvement within palliative care, and to identify enablers for successful models of involvement. Design: An exploratory qualitative design was utilized. Semi-structured interviews were conducted via zoom or telephone, and interview transcripts were subjected to inductive thematic analysis. Setting/participants: Purposive sampling of 23 participants with experience of public involvement in palliative care or related areas, across different health institutions in Australia and the United Kingdom, including public members and public involvement program coordinators. Results: Twelve public members and 11 program coordinators described their experience with public involvement in a palliative or related healthcare setting. Three themes emerged relating to successful involvement (1) Relationship building and maintenance: opportunities to enhance team familiarity, early involvement, consistent point of contact, and inclusion of more than one public member. (2) Clarity around goals of involvement: flexible roles and processes, ongoing communication, formal recognition of public input. (3) Training and support: mentoring opportunities, upskilling for public members and researchers. These enablers promoted a collegial atmosphere that enhanced personal and collective experiences of public involvement. Conclusions: This study reveals enablers that potentially shape the extent and effectiveness of public involvement in palliative care. Integrating these enablers has implications for future models of public involvement in palliative care and potential for enhanced research outcomes.
Competing Interests:	Declaration of conflicting interestsThe authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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Contributed Indexing:	Keywords: consumer involvement; palliative care; public involvement; qualitative research
Entry Date(s):	Date Created: 20260525 Date Completed: 20260817 Latest Revision: 20260819
Update Code:	20260819
PubMed Central ID:	PMC13478410
DOI:	10.1177/02692163261450746
PMID:	42183588
Βάση Δεδομένων:	MEDLINE

Περιγραφή
ISSN:	1477-030X
DOI:	10.1177/02692163261450746