Academic Journal

Remote Symptom Assessment in Ambulatory Palliative Care: User-Centered Development of an mHealth App.

Λεπτομέρειες βιβλιογραφικής εγγραφής
Τίτλος: Remote Symptom Assessment in Ambulatory Palliative Care: User-Centered Development of an mHealth App.
Συγγραφείς: Mindlis I; Parker Health Group Division of Geriatrics, Department of Family Medicine and Community Health, Robert Wood Johnson Medical School of Rutgers University, New Brunswick, New Jersey, USA., Bivona-Maldonado E; Division of Geriatrics and Palliative Medicine, Department of Medicine, Weill Cornell Medicine, New York, New York, USA., Yu Z; Division of Biostatistics, Department of Population Health Sciences, Weill Cornell Medicine, New York, New York, USA., Ekwebelem M; Division of Geriatrics and Palliative Medicine, Department of Medicine, Weill Cornell Medicine, New York, New York, USA., Banerjee S; Division of Biostatistics, Department of Population Health Sciences, Weill Cornell Medicine, New York, New York, USA., Reid MC; Division of Geriatrics and Palliative Medicine, Department of Medicine, Weill Cornell Medicine, New York, New York, USA., Blinderman CD; Division of Supportive Care and Acute Care Services, Memorial Sloan Kettering Cancer Center, New York, New York, USA., Shalev D; Division of Geriatrics and Palliative Medicine, Department of Medicine, Weill Cornell Medicine, New York, New York, USA.
Πηγή: Journal of palliative medicine [J Palliat Med] 2026 Jul; Vol. 29 (7), pp. 939-945. Date of Electronic Publication: 2026 Apr 10.
Τύπος έκδοσης: Journal Article
Γλώσσα: English
Στοιχεία περιοδικού: Publisher: Mary Ann Liebert, Inc Country of Publication: United States NLM ID: 9808462 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1557-7740 (Electronic) Linking ISSN: 15577740 NLM ISO Abbreviation: J Palliat Med Subsets: MEDLINE
Imprint Name(s): Original Publication: Larchmont, NY : Mary Ann Liebert, Inc., c1998-
Ιατρικοί όροι (MeSH): Palliative Care*/methods , Ambulatory Care*/methods , Symptom Assessment*/methods , Mobile Applications* , Telemedicine*, Humans ; Female ; Male ; Aged ; Middle Aged ; Aged, 80 and over ; Adult ; Focus Groups ; User-Centered Design ; Pilot Projects
Περίληψη: Background: Ambulatory palliative care (PC) focuses on managing complex symptoms, yet assessment relies on recall during infrequent visits to manage daily fluctuating symptoms. We aimed to design a PC-anchored remote symptom assessment (RSA) tool with patients and clinicians.
Methods: We used user-centered, Agile design to develop and iteratively refine EMA-PAL, a web-based RSA prototype. Patients and clinicians (N = 14) from an ambulatory PC clinic participated in staged prototype development and testing through focus groups and interviews.
Results: EMA-PAL features patient- and provider-facing interfaces that visualize daily Edmonton Symptom Assessment System (ESAS) scores, highlight severe symptoms, and support shared review during visits. Participants endorsed EMA-PAL's potential to enhance communication and workflow efficiency and identified priorities for future development (medication tracking and workflow integration).
Conclusion: This exploratory pilot suggests that PC-anchored RSA tools such as EMA-PAL may help address gaps in symptom assessment and timelier and patient-centered symptom management in ambulatory PC.
Competing Interests: Author Disclosure StatementNo competing financial interests exist.
Grant Information: K76 AG083287 United States AG NIA NIH HHS; T32 AG049666 United States AG NIA NIH HHS; UL1 TR002384 United States TR NCATS NIH HHS
Contributed Indexing: Keywords: ambulatory palliative care; mobile applications; remote patient monitoring; symptom assessment; user-centered design
Entry Date(s): Date Created: 20260410 Date Completed: 20260709 Latest Revision: 20260904
Update Code: 20260904
PubMed Central ID: PMC13535563
DOI: 10.1177/10966218261441208
PMID: 41963240
Βάση Δεδομένων: MEDLINE
Περιγραφή
ISSN:1557-7740
DOI:10.1177/10966218261441208