Academic Journal
New Voices, Shared Vision: How Emerging Research Scholars Are Supporting HPNA's Research Priorities.
| Τίτλος: | New Voices, Shared Vision: How Emerging Research Scholars Are Supporting HPNA's Research Priorities. |
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| Συγγραφείς: | Parajuli J; Jyotsana Parajuli, PhD, MGS, RN , is an Assistant Professor, School of Nursing and Affiliate Faculty, Gerontology Program, University of North Carolina at Charlotte., Levoy K; Kristin Levoy, PhD, MSN, RN, OCN, CNE , is Assistant Professor of Nursing, Research Scientist, Center for Aging Research, School of Nursing, Regenstrief Institute, Indiana University, Indianapolis., Bechthold AC; Avery C. Bechthold, PhD, BSN, RN , is Assistant Professor, College of Nursing, University of Tennessee, Knoxville., Degroot L; Lyndsay Degroot, PhD, RN, CNE , is Assistant Professor, School of Nursing, Indiana University, Indianapolis., Bennett CR; C. Robert Bennett, PhD, PPCNP-BC, CPNP-AC, PMHS , is Nurse Scientist, Division of Nursing Research, and Assistant Professor, Nursing, Mayo Clinic College of Medicine in Science, Phoenix, Arizona., Gazaway S; Shena Gazaway, PhD, RN, CHPN(R ), is Assistant Professor, School of Nursing, University of Alabama at Birmingham, Alabama., Coats H; Heather Coats, PhD, APRN-BC, FPCN, FAAN , is director, Research, Hospice and Palliative Nurses Association; Associate Professor, College of Nursing; and director, Palliative Care Inquiry for IPCC/MSPC, Department of General Internal Medicine, School of Medicine, University of Colorado, Anschutz Medical Campus, Aurora, CO. |
| Πηγή: | Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association [J Hosp Palliat Nurs] 2026 Jan 01; Vol. 28 (1), pp. 24-33. Date of Electronic Publication: 2025 Sep 02. |
| Τύπος έκδοσης: | Journal Article |
| Γλώσσα: | English |
| Στοιχεία περιοδικού: | Publisher: Nursecom, Inc Country of Publication: United States NLM ID: 100887419 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1539-0705 (Electronic) Linking ISSN: 15222179 NLM ISO Abbreviation: J Hosp Palliat Nurs Subsets: MEDLINE |
| Imprint Name(s): | Original Publication: Philadelphia, PA : Nursecom, Inc., c1999- |
| Ιατρικοί όροι (MeSH): | Research*/trends , Hospice and Palliative Care Nursing*/trends , Hospice and Palliative Care Nursing*/methods, Nursing Research/trends ; Societies, Nursing/trends ; Societies, Nursing/organization & administration ; Humans |
| Περίληψη: | Evidence-based practice is critical to providing high-quality hospice and palliative nursing care. Professional organizations, such as the Hospice and Palliative Nurses Association (HPNA), play a critical role in shaping the future of the hospice and palliative nursing field by identifying gaps in the science and fostering collaborative research efforts to inform evidence-based practices. One such driver is the tri-annual HPNA Research Agenda, which outlines key research priorities in hospice and palliative nursing, ultimately aiming to accelerate translation of research into practice and practice improvements. In this article, 6 emerging research scholars in the field and present and former co-chairs of the HPNA Emerging Research Scholar Special Interest Group reflect on the experiences that led them to pursue research careers in hospice and palliative nursing. Through a process of collective self-assessment, these scholars articulated their shared progress toward addressing the research priorities outlined in the 2023-2026 HPNA Research Agenda as a means of generating insights to direct future research efforts in the field. (Copyright © 2025 by The Hospice and Palliative Nurses Association. All rights reserved.) |
| Competing Interests: | The authors have no conflicts of interest to disclose. |
| References: | Coats H, Doyon K, Isaacson MJ, et al. The 2023-2026 Hospice and Palliative Nurses Association Research Agenda. J Hosp Palliat Nurs. 2023;25:55-74. National Consensus Project for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care. 4th ed.: National Coalition for Hospice and Palliative Care; 2018. https://www.nationalcoalitionhpc.org/ncp . Assessed June 2, 2025. Adolescents and Young Adults (AYAs) with Cancer. National Cancer Institute. 2023. https://www.cancer.gov/types/aya . Accessed September 5, 2023. Appleton V. Avenues of hope: art therapy and the resolution of trauma. Art Ther. 2001;18:6-13. Garrett KE. Creative Therapies, Complex Childhood Trauma, and Neurological Improvement: How the Arts Can Enhance Neuroplasticity: A Literature Review [expressive therapies capstone theses]: Lesley University; 2020. https://digitalcommons.lesley.edu/expressive_theses/366 . Accessed March 5, 2025. Dewar EO, Ahn C, Eraj S, Mahal BA, Sanford NN. Psychological distress and cognition among long-term survivors of adolescent and young adult cancer in the USA. J Cancer Surviv. 2021;15:776-784. Johansen KL, Chertow GM, Gilbertson DT, et al. US Renal Data System 2022 Annual Data Report: epidemiology of kidney disease in the United States. Am J Kidney Dis. 2023;81(3 Suppl1):A8-A11. Gazaway S, Gutierrez O, Wells R, et al. Exploring the health-related decision-making experiences of people with chronic kidney disease and their caregivers: a qualitative study. Health Expect. 2024;27:e13907. DePasquale N, Cabacungan A, Ephraim PL, et al. “I wish someone had told me that could happen”: a thematic analysis of patients’ unexpected experiences with end-stage kidney disease treatment. J Patient Exp. 2020;7:577-586. Baay S, Hemmelgarn B, Tam-Tham H, et al. Understanding adults with chronic kidney disease and their caregivers’ self-management experiences: a qualitative study using the Theoretical Domains Framework. Can J Kidney Health Dis. 2019;6:2054358119848126. Elk R, Gazaway S. Engaging social justice methods to create palliative care programs that reflect the cultural values of African American patients with serious illness and their families: a path towards health equity. J Law Med Ethics. 2021;49:222-230. Parajuli J, Tark A, Jao YL, Hupcey J. Barriers to palliative and hospice care utilization in older adults with cancer: a systematic review. J Geriatr Oncol. 2020;11:8-16. Parajuli J, Hupcey JE. A systematic review on barriers to palliative care in oncology. Am J Hosp Palliat Care. 2021;38:1361-1377. Parajuli J, Berish D, Valenti K, Jao Y-L. Prevalence and predictors of depressive symptoms in older adults with cancer. J Geriatr Oncol. 2021;12:618-622. Parajuli J, Chen J, Walsh A, Williams W, Sun V, Bakitas M. Knowledge and beliefs about palliative care among older adults with cancer in the United States. J Geriatr Oncol. 2023;14:101378. Parajuli J, Horne C, Chen ZJ. Advance care planning completion and decision-making among older adults with cancer and their family caregivers: findings from a mixed methods study. Am J Hosp Palliat Care. 2025:10499091251333081. doi:10.1177/10499091251333081. (PMID: 10.1177/10499091251333081) Parajuli J, Larson K. Changing life plans: when to engage caregivers of older adults with cancer in advance care planning. J Hosp Palliat Nurs. 2024;26:29-35. Xu H, Kadambi S, Mohile SG, et al. Caregiving burden of informal caregivers of older adults with advanced cancer: the effects of rurality and education. J Geriatr Oncol. 2021;12:1015-1021. Sun V, Puts M, Haase K, et al. The role of family caregivers in the care of older adults with cancer. Semin Oncol Nurs. 2021;37:151232. Temel JS, Sloan J, Zemla T, et al. Multisite, randomized trial of early integrated palliative and oncology care in patients with advanced lung and gastrointestinal cancer: Alliance A221303. J Palliat Med. 2020;23:922-929. Bakitas MA, Gazaway S, Underwood F, et al. Palliative video consultation and symptom distress among rural inpatients: a randomized clinical trial. JAMA Netw Open. 2025;8:e2519426. World Health Organization. Palliative care. 2020. https://www.who.int/news-room/fact-sheets/detail/palliative-care . Accessed February 24, 2025. Sanders JJ, Temin S, Ghoshal A, et al. Palliative care for patients with cancer: ASCO guideline update. J Clin Oncol. 2024;42:2336-2357. Dans M, Kutner JS, Agarwal R, et al. Palliative care, version 2.2021: featured updates to the NCCN guidelines. J Natl Compr Canc Netw. 2021;19:780-788. Marina Rodríguez-Gómez M, Pastor-Moreno G, Ruiz-Pérez I, Escribà-Agüir V, Benítez-Hidalgo V. Age- and gender-based social inequalities in palliative care for cancer patients: a systematic literature review. Front Public Health. 2024;12:1421940. Feld E, Singhi EK, Phillips S, Huang LC, Shyr Y, Horn L. Palliative care referrals for advanced non– small-cell lung cancer (NSCLC): patient and provider attitudes and practices. Clin Lung Cancer. 2019;20:e291-e298. Bandieri E, Borelli E, Gilioli F, et al. Stigma of palliative care among patients with advanced cancer and their caregivers on early palliative care. Cancers (Basel). 2023;15:3656. Kamal AH, Wolf S, Nicolla JM, et al. Usability of PCforMe in patients with advanced cancer referred to outpatient PC: results of a randomized, active-controlled pilot trial. J Pain Symptom Manag. 2019;58:382-389. Castro MJA, Pope A, Zhang Y, et al. Palliative medicine outpatient clinic ‘no-shows’: retrospective review. BMJ Support Palliat Care. 2021;14:e452-e455. Key KD, Furr-Holden D, Lewis EY, et al. The continuum of community engagement in research: a roadmap for understanding and assessing progress. Prog Community Health Partnersh. 2019;13:427-434. Dalton CC, Gottlieb LN. The concept of readiness to change. J Adv Nurs. 2003;42:108-117. Wilson KG, Sandoz EK, Kitchens J, Roberts M. The valued living questionnaire: defining and measuring valued action within a behavioral framework. Psychol Record. 2010;60:249-272. Bechthold AC, Knoepke CE, Ejem DB, et al. How values are discussed, reflected upon, and acted on by patients and family caregivers in the context of heart failure: a scoping review. Med Decis Making. 2023;43:508-520. Bechthold AC, McIlvennan CK, Matlock DD, et al. “When I do have some time, rather than spend it polishing silver, I want to spend it with my grandkids”: a qualitative exploration of patient values following left ventricular assist device implantation. BMC Palliat Care. 2024;23:128. Bechthold AC, McIlvennan CK, Matlock DD, et al. “Things that you thought mattered, none of that matters”: a qualitative exploration of family caregiver values following left ventricular assist device implantation. J Cardiovasc Nurs. 2025;40:334-344. Bechthold AC, Montgomery AP, Fazeli PL, Dionne‐Odom JN. Values elicitation among adults making health‐related decisions: a concept analysis. Nurs Forum. 2022;57:885-892. Bechthold AC, McIlvennan CK, LeJeune J, Odom JN, Casida J. Applying the concept of values elicitation after ventricular assist device implantation: role of the advanced practice registered nurse. AACN Adv Crit Care. 2025;36:63-67. Bechthold AC, Ejem DB, McIlvennan CK, et al. Facilitators and barriers to values discussions following LVAD implantation: perspectives from diverse patients and family caregivers. J Card Fail. 2024:S1071-9164(24)00969. doi:10.1016/j.cardfail.2024.11.015. (PMID: 10.1016/j.cardfail.2024.11.015) Bechthold AC, Azuero A, Puga F, et al. What is most important to family caregivers when helping patients make treatment-related decisions: findings from a National Survey. Cancers (Basel). 2023;15:4792. Bechthold AC, Abshire Saylor M, Wells RD. Lessons learned from 2 research studies enrolling underrepresented patients with ventricular assist devices and their family caregivers. J Card Fail. 2025;31:748-752. Peel C, Baker PS, Roth DL, Brown CJ, Bodner EV, Allman RM. Assessing mobility in older adults: the UAB study of aging life-space assessment. Phys Ther. 2005;85:1008-1019. Alonso W, Hupcey JE, Kitko L, Pozehl B, Kupzyk K. Adverse-event free survival, hospitalizations, and mortality in left ventricular assist device recipients: a rural-urban cohort comparison. J Cardiovasc Nurs. 2019;34:454-464. Frech A, Tarrence J, Natale G, Tumin D. Ventricular assist device technology and Black-White disparities on the heart transplant wait list. Prog Transplant. 2021;31:80-87. Wang GM, Teng MY, Yu WJ, Ren H, Cui XS. Life-space mobility among community-dwelling older persons: a scoping review. Geriatr Nurs. 2023;54:108-117. Michelson SE, Lee JK, Orsillo SM, Roemer L. The role of values-consistent behavior in generalized anxiety disorder. Depress Anxiety. 2011;28:358-366. McCracken LM, Yang SY. The role of values in a contextual cognitive-behavioral approach to chronic pain. Pain. 2006;123:137-145. Levelink M, Reinhold AK, Dewald O, Brütt AL. Psychological burden and coping in destination therapy patients with a left ventricular assist device: a qualitative content analysis. Artif Organs. 2022;46:1165-1180. Kato NP, Melnikov S, Denfeld QE, et al. Validity and reliability of the left ventricular assist device self-care behaviour scale. PLoS One. 2023;18:e0275465. Meyer DM, Nayak A, Wood KL, et al. The Society of Thoracic Surgeons Intermacs 2024 annual report: focus on outcomes in younger patients. Ann Thorac Surg. 2025;119:34-58. Chuzi S, Manning K. Integration of palliative care across the spectrum of heart failure care and therapies: considerations, contemporary data, and challenges. Curr Opin Cardiol. 2024;39:218-225. Butler J, Petrie MC, Bains M, et al. Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge period. Res Involv Engagem. 2023;9:23. Rossi LP, Granger BB, Bruckel JT, et al.; American Heart Association Complex Cardiovascular Patient and Family Care Committee of the Council on Cardiovascular and Stroke Nursing; Council on Clinical Cardiology; and Council on Quality of Care and Outcomes Research. Person-centered models for cardiovascular care: a review of the evidence: a scientific statement from the American Heart Association. Circulation. 2023;148:512-542. World Health Organization. Integrated people-centred care. https://www.who.int/health-topics/integrated-people-centered-care . Accessed April 4, 2024. Peled Y, Ducharme A, Kittleson M, et al. International Society for Heart and Lung Transplantation guidelines for the evaluation and care of cardiac transplant candidates—2024. J Heart Lung Transplant. 2024;43:1529-1628.e54. Periyakoil VS, Gunten CFV, Fischer S, Pantilat S, Quill T. Generalist versus specialist palliative medicine. J Palliat Med. 2022;25:193-199. Hui D, Hannon BL, Zimmermann C, Bruera E. Improving patient and caregiver outcomes in oncology: team-based, timely, and targeted palliative care. CA Cancer J Clin. 2018;68:356-376. Levoy K, Tarbi EC, De Santis JP. End-of-life decision making in the context of chronic life-limiting disease: a concept analysis and conceptual model. Nurs Outlook. 2020;68:784-807. Levoy K, Sullivan SS, Chittams J, Myers RL, Hickman SE, Meghani SH. Don’t throw the baby out with the bathwater: meta-analysis of advance care planning and end-of-life cancer care. J Pain Symptom Manage. 2023;65:e715-e743. Laidsaar-Powell R, Butow P, Charles C, et al. The TRIO framework: conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making. Patient Educ Couns. 2017;100:2035-2046. Levoy K, Rivera E, McHugh M, Hanlon A, Hirschman KB, Naylor MD. Caregiver engagement enhances outcomes among randomized control trials of transitional care interventions: a systematic review and meta-analysis. Med Care. 2022;60:519-529. Levoy K, Torke A, Longtin K, Matthias M, Hickman S. A primary palliative care communication intervention (PRECURSOR) for the patient-caregiver-provider triad in the setting of incurable cancer: results of a pilot study. Oncol Nurs Forum. 2025;52:6-7. DeGroot L, Pavlovic N, Perrin N, et al. Palliative care needs of physically frail community-dwelling older adults with heart failure. J Pain Symptom Manage. 2023;65:500-509. DeGroot L, Pavlovic N, Perrin N, et al. The association of unmet palliative care needs and physical frailty with clinical outcomes: a prospective study of adults with heart failure. J Cardiovasc Nurs. 2025;40:296-303. DeGroot L, Koirala B, Pavlovic N, et al. Outpatient palliative care in heart failure: an integrative review. J Palliat Med. 2020;23:1257-1269. Chyr LC, DeGroot L, Waldfogel JM, et al. Implementation and effectiveness of integrating palliative care into ambulatory care of noncancer serious chronic illness: mixed methods review and meta-analysis. Ann Fam Med. 2022;20:77-83. Boehm LM, Stolldorf DP, Jeffery AD. Implementation science training and resources for nurses and nurse scientists. J Nurs Scholarsh. 2020;52:47-54. Bekelman DB, Feser W, Morgan B, et al. Nurse and social worker palliative telecare team and quality of life in patients with COPD, heart failure, or interstitial lung disease: the ADAPT randomized clinical trial. JAMA. 2024;331:212-223. Green LW, Ottoson JM, García C, Hiatt RA. Diffusion theory and knowledge dissemination, utilization, and integration in public health. Annu Rev Public Health. 2009;30:151-174. Despa A. Faculty members voice concerns over impact of federal funding cuts on early career scholars, DEI research. https://www.dukechronicle.com/article/2025/05/duke-university-faculty-voice-concerns-federal-funding-cuts-impact-early-career-scientists-diversity-equity-research . Accessed July 3, 2025. Gilpin NW. The NIH is a sound investment for the US taxpayer. Elife. 2025;14:e106710. Petchler CM, Singer-Cohen R, Fisher MC, et al. Palliative care research and clinical practice priorities in the United States as identified by an interdisciplinary modified Delphi approach. J Palliat Med. 2024;27:1135-1145. National Institutes of Health. NIH guide for grants and contracts. https://grants.nih.gov/funding/nih-guide-for-grants-and-contracts . Accessed July 2, 2025. |
| Contributed Indexing: | Keywords: HPNA research agenda; emerging scholars; end-of-life care; hospice and palliative care nursing; serious illness |
| Entry Date(s): | Date Created: 20251217 Date Completed: 20260107 Latest Revision: 20260127 |
| Update Code: | 20260130 |
| DOI: | 10.1097/NJH.0000000000001165 |
| PMID: | 41405219 |
| Βάση Δεδομένων: | MEDLINE |
| ISSN: | 1539-0705 |
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| DOI: | 10.1097/NJH.0000000000001165 |