| Συγγραφείς: |
Monick SE; Department of Medicine, Mayo Clinic Arizona, Phoenix, Arizona, USA., Hanson C; Department of Medicine, Northwestern Medicine, Chicago, Illinois, USA., Hoehn KS; LaRabida Children's Hospital, Chicago, Illinois, USA.; Department of Pediatrics, University of Chicago, Chicago, Illinois, USA., Hlubocky FJ; Department of Medicine, University of Chicago, Chicago, Illinois, USA., Stock W; Department of Medicine, University of Chicago, Chicago, Illinois, USA., Duvall A; Department of Medicine, University of Chicago, Chicago, Illinois, USA.; Department of Pediatrics, University of Chicago, Chicago, Illinois, USA., McNeer J; Department of Pediatrics, University of Utah, Salt Lake City, Utah, USA., Henderson T; Department of Pediatrics, University of Chicago, Chicago, Illinois, USA., Daugherty C; Department of Medicine, University of Chicago, Chicago, Illinois, USA., Wang AY; Department of Medicine, Northshore University Health System, Evanston, Illinois, USA. |
| Περίληψη: |
Adolescents and young adults (AYA; ages 15-39) with acute leukemia have significant unmet supportive care needs. This pilot study integrated same-day palliative care (PC) into an AYA leukemia clinic, measuring symptom burden (SB) with validated symptom assessment tools at baseline, 3, and 6 months. Among 31 patients, moderate-severe symptoms included tiredness, anxiety, and poor appetite. AYAs experienced high SB and psychological distress, regardless of care phase or sociodemographics. With PC integration, tiredness and depression improved significantly; no symptoms worsened. Half of the PC visits led to management changes. Early integration of symptom-focused PC was feasible, value-adding, and well-received by patients. |