Academic Journal
Perceptions and Willingness of Patients and Caregivers on the Utilization of Patient-Generated Health Data: A Cross-Sectional Survey.
| Τίτλος: | Perceptions and Willingness of Patients and Caregivers on the Utilization of Patient-Generated Health Data: A Cross-Sectional Survey. |
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| Συγγραφείς: | Park YE; Department of Information Medicine, Asan Medical Center, College of Medicine, University of Ulsan, Seoul 05505, Republic of Korea., Beck SS; Asian Institute for Bioethics and Health Law, General Complex B/D Yonsei University Health System, Seoul 03722, Republic of Korea., Lee Y; Department of Information Medicine, Asan Medical Center, College of Medicine, University of Ulsan, Seoul 05505, Republic of Korea. |
| Πηγή: | International journal of environmental research and public health [Int J Environ Res Public Health] 2025 Jul 11; Vol. 22 (7). Date of Electronic Publication: 2025 Jul 11. |
| Τύπος έκδοσης: | Journal Article; Research Support, Non-U.S. Gov't |
| Γλώσσα: | English |
| Στοιχεία περιοδικού: | Publisher: MDPI Country of Publication: Switzerland NLM ID: 101238455 Publication Model: Electronic Cited Medium: Internet ISSN: 1660-4601 (Electronic) Linking ISSN: 16604601 NLM ISO Abbreviation: Int J Environ Res Public Health Subsets: MEDLINE |
| Imprint Name(s): | Original Publication: Basel : MDPI, c2004- |
| Ιατρικοί όροι (MeSH): | Caregivers*/psychology , Patient Generated Health Data*/statistics & numerical data , Patients*/psychology, Humans ; Cross-Sectional Studies ; Male ; Female ; Adult ; Middle Aged ; Aged ; Young Adult ; Adolescent ; Surveys and Questionnaires ; Privacy ; Perception |
| Περίληψη: | Patient-generated health data (PGHD) enhance traditional healthcare by enabling continuous monitoring and supporting personalized care, yet concerns over privacy, security, and integration into existing systems hinder broader adoption. This study examined the perceptions, awareness, and concerns of patients and caregivers regarding PGHD and assessed their willingness to share such data for clinical, research, and commercial purposes. A cross-sectional survey was conducted from 6 to 12 November 2023, involving 400 individuals with experience using PGHD. Participants completed structured questionnaires addressing health information management, PGHD usage, and attitudes toward its application. PGHD was most commonly used by patients with chronic conditions and guardians of minors, with tethered personal health record apps frequently utilized. Respondents identified improved self-management and better access to information as key benefits. However, significant concerns about data privacy and security emerged, especially regarding non-clinical use. Younger adults, particularly those in their 20s, showed lower willingness to engage with PGHD due to heightened privacy concerns. These findings suggest that, while support for clinical use of PGHD is strong, barriers related to trust and consent remain. Addressing privacy concerns and simplifying consent processes will be essential to promote equitable and responsible PGHD utilization across diverse patient populations. |
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| Grant Information: | 2022IP0067-2 Asan Institute of Life Science; HI23C077500 'Research and Demonstration of My Health Data Utilization Technology in Healthcare' project from the Korea Health Industry Development Institute (KHIDI) |
| Contributed Indexing: | Keywords: information management; patient-centered care; patient-generated health data; personal health records; telemedicine |
| Entry Date(s): | Date Created: 20250729 Date Completed: 20250730 Latest Revision: 20260817 |
| Update Code: | 20260817 |
| PubMed Central ID: | PMC12294519 |
| DOI: | 10.3390/ijerph22071099 |
| PMID: | 40724166 |
| Βάση Δεδομένων: | MEDLINE |
| ISSN: | 1660-4601 |
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| DOI: | 10.3390/ijerph22071099 |