Academic Journal
Developing Infrastructure to Realize the Value of Patient-Generated Health Data in a Large Integrated Health Care System: The Veterans Health Administration Experience.
| Title: | Developing Infrastructure to Realize the Value of Patient-Generated Health Data in a Large Integrated Health Care System: The Veterans Health Administration Experience. |
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| Authors: | Newton TJ; Office of Connected Care, Veterans Health Administration, Washington, DC, United States., Shah N; Office of Connected Care, Veterans Health Administration, Washington, DC, United States., Lewis K; Office of Connected Care, Veterans Health Administration, Washington, DC, United States., Zocchi MS; eHealth Partnered Evaluation Initiative, Veterans Affairs Bedford Healthcare System, Bedford, MA, United States.; Center for Health Optimization and Implementation Research (CHOIR), Veterans Affairs Bedford Healthcare System, 200 Springs Road, Bldg. 70, Bedford, MA, 01730, United States, 1 781-687-4737.; Division of Health Informatics and Implementation Science, Department of Population and Quantitative Health Sciences, University of Massachusetts Medical School, Worcester, MA, United States., Bixler FR; eHealth Partnered Evaluation Initiative, Veterans Affairs Bedford Healthcare System, Bedford, MA, United States.; Center of Innovation for Complex Chronic Healthcare (CINCCH), Edward Hines Jr. Veterans Affairs Hospital, Hines, IL, United States., Etingen B; eHealth Partnered Evaluation Initiative, Veterans Affairs Bedford Healthcare System, Bedford, MA, United States.; Research and Development Service, Dallas Veterans Affairs Medical Center, Dallas, TX, United States.; Peter O'Donnell Jr School of Public Health, University of Texas Southwestern Medical Center, Dallas, TX, United States., Lipschitz JM; eHealth Partnered Evaluation Initiative, Veterans Affairs Bedford Healthcare System, Bedford, MA, United States.; Department of Psychiatry, Brigham and Women's Hospital, Boston, MA, United States.; Department of Psychiatry, Harvard Medical School, Boston, MA, United States., Robinson SA; eHealth Partnered Evaluation Initiative, Veterans Affairs Bedford Healthcare System, Bedford, MA, United States.; Center for Health Optimization and Implementation Research (CHOIR), Veterans Affairs Bedford Healthcare System, 200 Springs Road, Bldg. 70, Bedford, MA, 01730, United States, 1 781-687-4737.; The Pulmonary Center, Boston University School of Medicine, Boston, MA, United States., Hogan TP; eHealth Partnered Evaluation Initiative, Veterans Affairs Bedford Healthcare System, Bedford, MA, United States.; Center for Health Optimization and Implementation Research (CHOIR), Veterans Affairs Bedford Healthcare System, 200 Springs Road, Bldg. 70, Bedford, MA, 01730, United States, 1 781-687-4737.; Peter O'Donnell Jr School of Public Health, University of Texas Southwestern Medical Center, Dallas, TX, United States., Shimada SL; eHealth Partnered Evaluation Initiative, Veterans Affairs Bedford Healthcare System, Bedford, MA, United States.; Center for Health Optimization and Implementation Research (CHOIR), Veterans Affairs Bedford Healthcare System, 200 Springs Road, Bldg. 70, Bedford, MA, 01730, United States, 1 781-687-4737.; Division of Health Informatics and Implementation Science, Department of Population and Quantitative Health Sciences, University of Massachusetts Medical School, Worcester, MA, United States.; Department of Health Law, Policy, and Management, Boston University School of Public Health, Boston, MA, United States. |
| Source: | Journal of medical Internet research [J Med Internet Res] 2025 Jun 06; Vol. 27, pp. e70755. Date of Electronic Publication: 2025 Jun 06. |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: JMIR Publications Country of Publication: Canada NLM ID: 100959882 Publication Model: Electronic Cited Medium: Internet ISSN: 1438-8871 (Electronic) Linking ISSN: 14388871 NLM ISO Abbreviation: J Med Internet Res Subsets: MEDLINE |
| Imprint Name(s): | Publication: <2011- > : Toronto : JMIR Publications Original Publication: [Pittsburgh, PA? : s.n., 1999- |
| MeSH Terms: | Delivery of Health Care, Integrated*/organization & administration , United States Department of Veterans Affairs* , Patient Generated Health Data*, United States ; Humans ; Electronic Health Records |
| Abstract: | Unlabelled: Patient-generated health data (PGHD) encompass health-related information created, recorded, and gathered by patients in their daily lives, and are distinct from data collected in clinical settings. PGHD can offer insight into patients' everyday health behaviors and conditions, supporting health management and clinical decision-making. The Veterans Health Administration (VHA) has developed a robust infrastructure to collect PGHD, including automatically collected data from digital sensors and patient-entered data. This effort is guided by comprehensive policy and strategy documents to ensure the secure storage and effective use of PGHD. This paper describes the development and implementation of an infrastructure to support PGHD within the VHA and highlights envisioned clinical and research uses of PGHD to advance health care for US veterans. The PGHD database was built to Fast Healthcare Interoperability Resources standards, facilitating secure data storage and exchange of PGHD. Clinical tools, such as the provider-facing dashboards, make PGHD accessible from the electronic health records. Research and evaluation efforts focus on evaluating PGHD's impact on patient engagement, clinical outcomes, and health care equity. The VHA's comprehensive PGHD infrastructure represents a significant advancement in personalized health care and patient engagement. The integration of PGHD into clinical practice can enhance shared decision-making and self-management, while research and evaluation efforts can address how to maximize the benefits of PGHD for veterans. The VHA's approach sets a benchmark for other US health care systems in leveraging PGHD to achieve the broad aims of enhancing stakeholder health care experiences, improving population health and health equity, and reducing costs. (© Terry J Newton, Nilesh Shah, Katherine Lewis, Mark S Zocchi, Felicia R Bixler, Bella Etingen, Jessica M Lipschitz, Stephanie A Robinson, Timothy P Hogan, Stephanie L Shimada. Originally published in the Journal of Medical Internet Research (https://www.jmir.org).) |
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| Grant Information: | K23 MH120324 United States MH NIMH NIH HHS |
| Contributed Indexing: | Keywords: Veterans Health Administration; clinical decision-making; health data interoperability; mobile health apps; patient-generated health data |
| Entry Date(s): | Date Created: 20250606 Date Completed: 20250606 Latest Revision: 20260830 |
| Update Code: | 20260830 |
| PubMed Central ID: | PMC12165444 |
| DOI: | 10.2196/70755 |
| PMID: | 40479588 |
| Database: | MEDLINE |
| ISSN: | 1438-8871 |
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| DOI: | 10.2196/70755 |