"Things That You Thought Mattered, None of That Matters": A Qualitative Exploration of Family Caregiver Values following Left Ventricular Assist Device Implantation.

Λεπτομέρειες βιβλιογραφικής εγγραφής
Τίτλος:	"Things That You Thought Mattered, None of That Matters": A Qualitative Exploration of Family Caregiver Values following Left Ventricular Assist Device Implantation.
Συγγραφείς:	Bechthold AC, McIlvennan CK, Matlock DD, Ejem DB, Wells RD, LeJeune J, Bakitas MA, Odom JN
Πηγή:	The Journal of cardiovascular nursing [J Cardiovasc Nurs] 2025 Jul-Aug 01; Vol. 40 (4), pp. 334-344. Date of Electronic Publication: 2024 May 23.
Τύπος έκδοσης:	Journal Article; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, Non-P.H.S.; Research Support, N.I.H., Extramural
Γλώσσα:	English
Στοιχεία περιοδικού:	Publisher: Lippincott Williams & Wilkins Country of Publication: United States NLM ID: 8703516 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1550-5049 (Electronic) Linking ISSN: 08894655 NLM ISO Abbreviation: J Cardiovasc Nurs Subsets: MEDLINE
Imprint Name(s):	Publication: 2003- : Hagerstown, MD : Lippincott Williams & Wilkins Original Publication: [Frederick, MD : Aspen Publishers, c1986-
Ιατρικοί όροι (MeSH):	Caregivers/psychology , Heart Failure/therapy , Heart-Assist Devices*, Humans ; Female ; Male ; Middle Aged ; Aged ; Qualitative Research ; Adult
Περίληψη:	Background: Intentional exploration, or elicitation, of patient and family values-who/what matters most-is critical to the delivery of person-centered care, yet the values elicitation experiences of family caregivers have been understudied. Understanding caregiver experiences discussing, reflecting upon, and acting on their values is critical to optimizing health decisions after left ventricular assist device (LVAD) implantation. Objective: The aim of this study was to explore the values elicitation experiences of family caregivers of individuals with an LVAD in the postimplantation period. Methods: This was a qualitative descriptive study of LVAD caregivers recruited from an outpatient clinic in the southeast United States. After completing one-on-one semistructured interviews, participants' transcripts were analyzed using thematic analysis. Results: Interviewed caregivers (n = 21) were 27 to 76 years old, with 67% African American, 76% female, 76% urban-dwelling, and 62% a spouse/partner. LVAD implantation was an impactful experience prompting caregiver reevaluation of their values; these values became instrumental to navigating decisions and managing stressors from their caregiving role. Three broad themes of caregiver values elicitation experiences emerged: (1) caregivers leverage their values for strength and guidance in navigating their caregiving role, (2) LVAD implantation prompts (re)evaluation of relationships and priorities, and (3) caregivers convey their goals and priorities when deemed relevant to patient care. Conclusions: Having a care recipient undergo LVAD implantation prompted caregivers to reevaluate their values, which were used to navigate caregiving decisions and stressors. Findings highlight the need for healthcare professionals to engage and support caregivers after LVAD implantation. (Copyright © 2024 The Authors. Published by Wolters Kluwer Health, Inc.)
Competing Interests:	The authors have no conflicts of interest to disclose.
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Grant Information:	UL1 TR001866 United States TR NCATS NIH HHS
Contributed Indexing:	Keywords: caregivers; heart-assist devices; palliative care; patient-centered care; qualitative research
Entry Date(s):	Date Created: 20240524 Date Completed: 20250610 Latest Revision: 20250916
Update Code:	20260130
PubMed Central ID:	PMC12147740
DOI:	10.1097/JCN.0000000000001105
PMID:	38786984
Βάση Δεδομένων:	MEDLINE

Περιγραφή
ISSN:	1550-5049
DOI:	10.1097/JCN.0000000000001105