Academic Journal

"When I do have some time, rather than spend it polishing silver, I want to spend it with my grandkids": a qualitative exploration of patient values following left ventricular assist device implantation.

Λεπτομέρειες βιβλιογραφικής εγγραφής
Τίτλος: "When I do have some time, rather than spend it polishing silver, I want to spend it with my grandkids": a qualitative exploration of patient values following left ventricular assist device implantation.
Συγγραφείς: Bechthold AC; School of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA. abechth@uab.edu., McIlvennan CK; Division of Cardiology, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.; Adult and Child Consortium for Health Outcomes Research and Delivery Science, University of Colorado Anschutz Medical Campus, Aurora, CO, USA., Matlock DD; Adult and Child Consortium for Health Outcomes Research and Delivery Science, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.; Division of Geriatric Medicine, University of Colorado School of Medicine, Aurora, CO, USA., Ejem DB; School of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA., Wells RD; School of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA., LeJeune J; Cardiology Clinic, UAB Hospital, Birmingham, AL, USA., Bakitas MA; School of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA., Odom JN; School of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA.
Πηγή: BMC palliative care [BMC Palliat Care] 2024 May 22; Vol. 23 (1), pp. 128. Date of Electronic Publication: 2024 May 22.
Τύπος έκδοσης: Journal Article
Γλώσσα: English
Στοιχεία περιοδικού: Publisher: BioMed Central Country of Publication: England NLM ID: 101088685 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-684X (Electronic) Linking ISSN: 1472684X NLM ISO Abbreviation: BMC Palliat Care Subsets: MEDLINE
Imprint Name(s): Original Publication: London : BioMed Central, [2002-
Ιατρικοί όροι (MeSH): Heart-Assist Devices*/psychology , Qualitative Research*, Humans ; Male ; Middle Aged ; Female ; Adult ; Aged ; Adaptation, Psychological
Περίληψη: Background: Values are broadly understood to have implications for how individuals make decisions and cope with serious illness stressors, yet it remains uncertain how patients and their family and friend caregivers discuss, reflect upon, and act on their values in the post-left ventricular assist device (LVAD) implantation context. This study aimed to explore the values elicitation experiences of patients with an LVAD in the post-implantation period.
Methods: Qualitative descriptive study of LVAD recipients. Socio-demographics and patient resource use were analyzed using descriptive statistics and semi-structured interview data using thematic analysis. Adult (> 18 years) patients with an LVAD receiving care at an outpatient clinic in the Southeastern United States.
Results: Interviewed patients (n = 27) were 30-76 years, 59% male, 67% non-Hispanic Black, 70% married/living with a partner, and 70% urban-dwelling. Three broad themes of patient values elicitation experiences emerged: 1) LVAD implantation prompts deep reflection about life and what is important, 2) patient values are communicated in various circumstances to convey personal goals and priorities to caregivers and clinicians, and 3) patients leverage their values for strength and guidance in navigating life post-LVAD implantation. LVAD implantation was an impactful experience often leading to reevaluation of patients' values; these values became instrumental to making health decisions and coping with stressors during the post-LVAD implantation period. Patient values arose within broad, informal exchanges and focused, decision-making conversations with their caregiver and the healthcare team.
Conclusions: Clinicians should consider assessing the values of patients post-implantation to facilitate shared understanding of their goals/priorities and identify potential changes in their coping.
(© 2024. The Author(s).)
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Grant Information: UL1 TR001866 United States TR NCATS NIH HHS
Contributed Indexing: Keywords: Beliefs; Communication; Goals; Patient-centered care; Qualitative research; Self-care, values; Shared decision-making; Ventricular assist devices
Entry Date(s): Date Created: 20240522 Date Completed: 20240522 Latest Revision: 20260910
Update Code: 20260910
PubMed Central ID: PMC11110360
DOI: 10.1186/s12904-024-01454-y
PMID: 38778297
Βάση Δεδομένων: MEDLINE
Περιγραφή
ISSN:1472-684X
DOI:10.1186/s12904-024-01454-y