eBook
Genomic Data Sharing : Case Studies, Challenges, and Opportunities for Precision Medicine
| Title: | Genomic Data Sharing : Case Studies, Challenges, and Opportunities for Precision Medicine |
|---|---|
| Description: | Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges.Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing. - Covers both technical and ELSI (ethical, legal, and social implications) perspectives on genomic data sharing - Includes applied case studies of existing genomic data sharing consortia, including the eMERGE Network, Undiagnosed Disease Network, and the Global Alliance for Genomics and Health (GA4GH), among others - Features chapter contributions from international leaders in genomic data sharing |
| Authors: | Jennifer B. Mccormick, Jyotishman Pathak |
| Resource Type: | eBook. |
| Subjects: | Precision medicine--Data processing, Genomics--Data processing, Genomes--Data processing |
| Categories: | MEDICAL / Genetics, SCIENCE / Life Sciences / Genetics & Genomics |
| Database: | eBook Index |
| FullText | Text: Availability: 0 |
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| Header | DbId: edsebk DbLabel: eBook Index An: 2432018 RelevancyScore: 962 AccessLevel: 6 PubType: eBook PubTypeId: ebook PreciseRelevancyScore: 962.24267578125 |
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| Items | – Name: Title Label: Title Group: Ti Data: Genomic Data Sharing : Case Studies, Challenges, and Opportunities for Precision Medicine – Name: Abstract Label: Description Group: Ab Data: Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges.Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing. - Covers both technical and ELSI (ethical, legal, and social implications) perspectives on genomic data sharing - Includes applied case studies of existing genomic data sharing consortia, including the eMERGE Network, Undiagnosed Disease Network, and the Global Alliance for Genomics and Health (GA4GH), among others - Features chapter contributions from international leaders in genomic data sharing – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Jennifer+B%2E+Mccormick%22">Jennifer B. Mccormick</searchLink><br /><searchLink fieldCode="AR" term="%22Jyotishman+Pathak%22">Jyotishman Pathak</searchLink> – Name: TypePub Label: Resource Type Group: TypPub Data: eBook. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Precision+medicine--Data+processing%22">Precision medicine--Data processing</searchLink><br /><searchLink fieldCode="DE" term="%22Genomics--Data+processing%22">Genomics--Data processing</searchLink><br /><searchLink fieldCode="DE" term="%22Genomes--Data+processing%22">Genomes--Data processing</searchLink> – Name: SubjectBISAC Label: Categories Group: Su Data: <searchLink fieldCode="ZK" term="%22MEDICAL+%2F+Genetics%22">MEDICAL / Genetics</searchLink><br /><searchLink fieldCode="ZK" term="%22SCIENCE+%2F+Life+Sciences+%2F+Genetics+%26+Genomics%22">SCIENCE / Life Sciences / Genetics & Genomics</searchLink> |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=edsebk&AN=2432018 |
| RecordInfo | BibRecord: BibEntity: Classifications: – Code: 572.860285 Scheme: ddc Type: prePub Languages: – Code: eng Text: English Subjects: – SubjectFull: Precision medicine--Data processing Type: general – SubjectFull: Genomics--Data processing Type: general – SubjectFull: Genomes--Data processing Type: general Titles: – TitleFull: Genomic Data Sharing : Case Studies, Challenges, and Opportunities for Precision Medicine Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Jennifer B. Mccormick – PersonEntity: Name: NameFull: Jyotishman Pathak – PersonEntity: Name: NameFull: Jennifer B. Mccormick – PersonEntity: Name: NameFull: Jyotishman Pathak IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Type: published Y: 2022 – D: 19 M: 01 Type: profile Y: 2023 Identifiers: – Type: isbn-print Value: 9780128198032 – Type: isbn-electronic Value: 9780128198049 Titles: – TitleFull: Genomic Data Sharing : Case Studies, Challenges, and Opportunities for Precision Medicine Type: main |
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