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Reducing the risk of visual disability for children with juvenile idiopathic arthritis uveitis through disease surveillance: past and future challenges

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Τίτλος: Reducing the risk of visual disability for children with juvenile idiopathic arthritis uveitis through disease surveillance: past and future challenges
Συγγραφείς: Solebo, Ameenat Lola, Foeldvari, Ivan
Πηγή: http://lobid.org/resources/99370670573406441#!, 23(1):4.
Έτος έκδοσης: 2025
Συλλογή: Publisso (ZB MED-Publikationsportal Lebenswissenschaften)
Θεματικοί όροι: Uveitis/etiology [MeSH], Humans [MeSH], Vision Disorders/prevention, Commentary, Uveitis/diagnosis [MeSH], Vision Disorders/epidemiology [MeSH], Arthritis, Juvenile/complications [MeSH], Blindness/epidemiology [MeSH], Uveitis/epidemiology [MeSH], Tomography, Optical Coherence/methods [MeSH], Blindness/prevention, Vision Disorders/etiology [MeSH], Blindness/etiology [MeSH], Child [MeSH]
Περιγραφή: Childhood blindness significantly impacts development, education, employment, and mental health, creating burden for families and society. Between 8% and 30% of children with Juvenile Idiopathic Arthritis (JIA) develop a potentially blinding chronic inflammatory eye disease, uveitis (JIAU). Alongside the use of disease-modifying agents and anti-TNF immunomodulators, JIAU surveillance has helped to reduce the risk of JIAU related blindness.Inconsistent guidance on JIAU surveillance has previously been a hindrance to care delivery and access for professional and families. The Multinational Interdisciplinary Working Group for Uveitis in Childhood (MIWGUC) has brought some much-needed standardisation to JIA surveillance, developing a consensus-based screening proposal which simplifies the protocol, supporting implementation amongst non-specialists, and ensuring that children at risk receive the timely eye examination necessary to avoid life-changing visual disability. In this commentary on the MIWGUC surveillance proposal, we also address the implementation of such surveillance. A global shortage of ophthalmologists threatens the sustainability of these surveillance programs. Innovative approaches could be imaging-based detection. The accessibility of Optical Coherence Tomography (OCT) imaging may make OCT a feasible future option for community-based surveillance, reducing the burden on ophthalmologists, and on patients and their families.
Τύπος εγγράφου: article in journal/newspaper
Γλώσσα: English
ISBN: 978-9937-0-6705-8
9937-0-6705-7
Relation: https://repository.publisso.de/resource/frl:6493017; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11744860/
DOI: 10.1186/s12969-024-01037-4
Διαθεσιμότητα: https://repository.publisso.de/resource/frl:6493017
https://doi.org/10.1186/s12969-024-01037-4
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11744860/
Rights: https://creativecommons.org/licenses/by-nc-nd/4.0/
Αριθμός Καταχώρησης: edsbas.231B8C9C
Βάση Δεδομένων: BASE
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  Data: Reducing the risk of visual disability for children with juvenile idiopathic arthritis uveitis through disease surveillance: past and future challenges
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  Data: <searchLink fieldCode="AR" term="%22Solebo%2C+Ameenat+Lola%22">Solebo, Ameenat Lola</searchLink><br /><searchLink fieldCode="AR" term="%22Foeldvari%2C+Ivan%22">Foeldvari, Ivan</searchLink>
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  Data: 2025
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  Data: Childhood blindness significantly impacts development, education, employment, and mental health, creating burden for families and society. Between 8% and 30% of children with Juvenile Idiopathic Arthritis (JIA) develop a potentially blinding chronic inflammatory eye disease, uveitis (JIAU). Alongside the use of disease-modifying agents and anti-TNF immunomodulators, JIAU surveillance has helped to reduce the risk of JIAU related blindness.Inconsistent guidance on JIAU surveillance has previously been a hindrance to care delivery and access for professional and families. The Multinational Interdisciplinary Working Group for Uveitis in Childhood (MIWGUC) has brought some much-needed standardisation to JIA surveillance, developing a consensus-based screening proposal which simplifies the protocol, supporting implementation amongst non-specialists, and ensuring that children at risk receive the timely eye examination necessary to avoid life-changing visual disability. In this commentary on the MIWGUC surveillance proposal, we also address the implementation of such surveillance. A global shortage of ophthalmologists threatens the sustainability of these surveillance programs. Innovative approaches could be imaging-based detection. The accessibility of Optical Coherence Tomography (OCT) imaging may make OCT a feasible future option for community-based surveillance, reducing the burden on ophthalmologists, and on patients and their families.
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      – SubjectFull: Blindness/epidemiology [MeSH]
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      – SubjectFull: Uveitis/epidemiology [MeSH]
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