Academic Journal
National Regulation on Processing Data for Scientific Research Purposes and Biobanking Activities: Reflections on the Experience in Austria.
| Τίτλος: | National Regulation on Processing Data for Scientific Research Purposes and Biobanking Activities: Reflections on the Experience in Austria. |
|---|---|
| Συγγραφείς: | Osiejewicz, Joanna, Zherlitsyn, Dmytro M., Zadorozhna, Svitlana M., Tavolzhanskyi, Oleksii V., Dei, Maryna O. |
| Πηγή: | Asian Bioethics Review; Jan2024, Vol. 16 Issue 1, p47-63, 17p |
| Θεματικοί όροι: | Problem-solving therapy, Electronic data processing, Data protection, Medical disclosure |
| Γεωγραφικοί όροι: | Austria, Ukraine, Poland |
| Εταιρία/Οντότητα: | European Court of Human Rights, Council of Europe |
| Περίληψη: | The application of the latest technologies in biology and medicine has brought them to a qualitatively new level of possibilities. Worldwide, biobanking is actively developing through the creation of biobanks of various types and purposes, whose resources are used to solve therapeutic or scientific problems. Legal science remains an open question concerning the boundary that runs between the right to data protection and the scope of disclosure of data needed for medical purposes. In this article, the author considers peculiarities of data processing in the context of biobanking activity on the example of Austria and its national legislation. In addition, the article reveals features of the approaches of the European Court of Human Rights (ECtHR) and the Council of Europe to the issue of biobanking in general, its characteristics in the context of data, and legal regulation of this phenomenon in the national law of states. The author devoted an important part of the study to the role of Austria's experience in the context of data processing for scientific purposes and the development of biobanking for a number of other European states. The aim of the article is to analyze the Austrian legislation on data processing for scientific research and biobanking, the attitude of the Council of Europe to this phenomenon, and the practice of the ECtHR, as well as to consider the impact of the current world situation on these activities. The leading method of research used in the article is the formal-legal method. The article analyzes the Austrian law in the context of data processing in medical research, the relationship of the specifics of personal data protection, and the need to disclose them for scientific purposes. The author pays special attention to the influence of Austrian law on the legislation of other countries, which is reflected in the conclusions to the article. In addition, based on an analysis of the application of the Austrian experience to the legislation of Poland and Ukraine, the author points out the necessary changes that should be made in the laws of these countries. [ABSTRACT FROM AUTHOR] |
| Copyright of Asian Bioethics Review is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Βάση Δεδομένων: | Biomedical Index |
| FullText | Links: – Type: other Text: Availability: 0 CustomLinks: – Url: https://dx.doi.org/doi:10.1007/s41649-022-00231-4 Name: EDS - Springer Nature Journals (s7799221) Category: fullText Text: View record at Springer |
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| Header | DbId: edm DbLabel: Biomedical Index An: 174685222 RelevancyScore: 950 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 949.9453125 |
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| Items | – Name: Title Label: Title Group: Ti Data: National Regulation on Processing Data for Scientific Research Purposes and Biobanking Activities: Reflections on the Experience in Austria. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Osiejewicz%2C+Joanna%22">Osiejewicz, Joanna</searchLink><br /><searchLink fieldCode="AR" term="%22Zherlitsyn%2C+Dmytro+M%2E%22">Zherlitsyn, Dmytro M.</searchLink><br /><searchLink fieldCode="AR" term="%22Zadorozhna%2C+Svitlana+M%2E%22">Zadorozhna, Svitlana M.</searchLink><br /><searchLink fieldCode="AR" term="%22Tavolzhanskyi%2C+Oleksii+V%2E%22">Tavolzhanskyi, Oleksii V.</searchLink><br /><searchLink fieldCode="AR" term="%22Dei%2C+Maryna+O%2E%22">Dei, Maryna O.</searchLink> – Name: TitleSource Label: Source Group: Src Data: Asian Bioethics Review; Jan2024, Vol. 16 Issue 1, p47-63, 17p – Name: Subject Label: Subject Terms Group: Su Data: <searchLink fieldCode="DE" term="%22Problem-solving+therapy%22">Problem-solving therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Electronic+data+processing%22">Electronic data processing</searchLink><br /><searchLink fieldCode="DE" term="%22Data+protection%22">Data protection</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+disclosure%22">Medical disclosure</searchLink> – Name: SubjectGeographic Label: Geographic Terms Group: Su Data: <searchLink fieldCode="DE" term="%22Austria%22">Austria</searchLink><br /><searchLink fieldCode="DE" term="%22Ukraine%22">Ukraine</searchLink><br /><searchLink fieldCode="DE" term="%22Poland%22">Poland</searchLink> – Name: SubjectCompany Label: Company/Entity Group: Su Data: <searchLink fieldCode="CO" term="%22European+Court+of+Human+Rights%22">European Court of Human Rights</searchLink><br /><searchLink fieldCode="CO" term="%22Council+of+Europe%22">Council of Europe</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: The application of the latest technologies in biology and medicine has brought them to a qualitatively new level of possibilities. Worldwide, biobanking is actively developing through the creation of biobanks of various types and purposes, whose resources are used to solve therapeutic or scientific problems. Legal science remains an open question concerning the boundary that runs between the right to data protection and the scope of disclosure of data needed for medical purposes. In this article, the author considers peculiarities of data processing in the context of biobanking activity on the example of Austria and its national legislation. In addition, the article reveals features of the approaches of the European Court of Human Rights (ECtHR) and the Council of Europe to the issue of biobanking in general, its characteristics in the context of data, and legal regulation of this phenomenon in the national law of states. The author devoted an important part of the study to the role of Austria's experience in the context of data processing for scientific purposes and the development of biobanking for a number of other European states. The aim of the article is to analyze the Austrian legislation on data processing for scientific research and biobanking, the attitude of the Council of Europe to this phenomenon, and the practice of the ECtHR, as well as to consider the impact of the current world situation on these activities. The leading method of research used in the article is the formal-legal method. The article analyzes the Austrian law in the context of data processing in medical research, the relationship of the specifics of personal data protection, and the need to disclose them for scientific purposes. The author pays special attention to the influence of Austrian law on the legislation of other countries, which is reflected in the conclusions to the article. In addition, based on an analysis of the application of the Austrian experience to the legislation of Poland and Ukraine, the author points out the necessary changes that should be made in the laws of these countries. [ABSTRACT FROM AUTHOR] – Name: Abstract Label: Group: Ab Data: <i>Copyright of Asian Bioethics Review is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s41649-022-00231-4 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 17 StartPage: 47 Subjects: – SubjectFull: Austria Type: general – SubjectFull: Ukraine Type: general – SubjectFull: Poland Type: general – SubjectFull: European Court of Human Rights Type: general – SubjectFull: Council of Europe Type: general – SubjectFull: Problem-solving therapy Type: general – SubjectFull: Electronic data processing Type: general – SubjectFull: Data protection Type: general – SubjectFull: Medical disclosure Type: general Titles: – TitleFull: National Regulation on Processing Data for Scientific Research Purposes and Biobanking Activities: Reflections on the Experience in Austria. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Osiejewicz, Joanna – PersonEntity: Name: NameFull: Zherlitsyn, Dmytro M. – PersonEntity: Name: NameFull: Zadorozhna, Svitlana M. – PersonEntity: Name: NameFull: Tavolzhanskyi, Oleksii V. – PersonEntity: Name: NameFull: Dei, Maryna O. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Text: Jan2024 Type: published Y: 2024 Identifiers: – Type: issn-print Value: 17939453 Numbering: – Type: volume Value: 16 – Type: issue Value: 1 Titles: – TitleFull: Asian Bioethics Review Type: main |
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