Academic Journal
The fetus's right to the privacy of genetic data.
| Τίτλος: | The fetus's right to the privacy of genetic data. (English) |
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| Συγγραφείς: | Karami, Mehnoush, Zarvandi, Hossein |
| Πηγή: | Interdisciplinary Studies in the Humanities; Summer2026, Vol. 18 Issue 3, p147-177, 40p |
| Θεματικοί όροι: | Genetic privacy, Data protection laws, Legal doctrines, Bioethics, Legal representation, Prenatal diagnosis |
| Περίληψη: | Recent advancements in genetic sciences, particularly the development of non-invasive prenatal testing (NIPT) technologies, have enabled the precise extraction and analysis of fetal genetic data. These data, due to their unique, lifelong stability, hereditary nature, and ability to predict health conditions and susceptibility to certain diseases, are considered among the most sensitive forms of personal data. Unauthorized processing or disclosure of such data may have profound consequences on identity, social, ethical, and legal levels. Despite the growing body of literature on genetic data privacy, a systematic examination of the jurisprudential and legal aspects of protecting fetal genetic data privacy, particularly under Iranian law, remains significantly underdeveloped. This study, which is interdisciplinary in nature and lies at the intersection of genetics, Islamic jurisprudence, and law, aims to elucidate the jurisprudential and legal foundations of protecting fetal genetic data privacy and to conduct a comparative analysis of Iranian legal frameworks with international documents and standards in this domain. The research, employing a qualitative, descriptive-analytical, and comparative approach, draws data from a review of jurisprudential texts, national laws, and international regulations, including the General Data Protection Regulation (GDPR) of the European Union and UNESCO declarations. The data are analyzed using qualitative content analysis methods. The findings indicate that fundamental principles of Islamic jurisprudence, such as the prohibition of espionage, the principle of no harm (la darar), the principle of human dignity, and the principle of trust (amanat), provide substantial theoretical support for safeguarding the privacy of fetal genetic data. International instruments, including the GDPR and the Oviedo Convention, offer clear frameworks for informed consent, data processing restrictions, data security, and the prohibition of genetic discrimination. The study suggests that by integrating Islamic jurisprudential principles with international standards, a comprehensive and contextually adapted model for protecting fetal genetic data privacy within the Iranian legal system can be established. In this regard, there is an increasing need for the formulation of independent and explicit regulations, particularly in determining the legal representative of the fetus, the principle of data minimization, technical-organizational security requirements, data governance, and restrictions on data transfer. [ABSTRACT FROM AUTHOR] |
| Copyright of Interdisciplinary Studies in the Humanities is the property of Interdisciplinary Studies in the Humanities and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Βάση Δεδομένων: | Complementary Index |
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| Items | – Name: Title Label: Title Group: Ti Data: The fetus's right to the privacy of genetic data. (English) – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Karami%2C+Mehnoush%22">Karami, Mehnoush</searchLink><br /><searchLink fieldCode="AR" term="%22Zarvandi%2C+Hossein%22">Zarvandi, Hossein</searchLink> – Name: TitleSource Label: Source Group: Src Data: Interdisciplinary Studies in the Humanities; Summer2026, Vol. 18 Issue 3, p147-177, 40p – Name: Subject Label: Subject Terms Group: Su Data: <searchLink fieldCode="DE" term="%22Genetic+privacy%22">Genetic privacy</searchLink><br /><searchLink fieldCode="DE" term="%22Data+protection+laws%22">Data protection laws</searchLink><br /><searchLink fieldCode="DE" term="%22Legal+doctrines%22">Legal doctrines</searchLink><br /><searchLink fieldCode="DE" term="%22Bioethics%22">Bioethics</searchLink><br /><searchLink fieldCode="DE" term="%22Legal+representation%22">Legal representation</searchLink><br /><searchLink fieldCode="DE" term="%22Prenatal+diagnosis%22">Prenatal diagnosis</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Recent advancements in genetic sciences, particularly the development of non-invasive prenatal testing (NIPT) technologies, have enabled the precise extraction and analysis of fetal genetic data. These data, due to their unique, lifelong stability, hereditary nature, and ability to predict health conditions and susceptibility to certain diseases, are considered among the most sensitive forms of personal data. Unauthorized processing or disclosure of such data may have profound consequences on identity, social, ethical, and legal levels. Despite the growing body of literature on genetic data privacy, a systematic examination of the jurisprudential and legal aspects of protecting fetal genetic data privacy, particularly under Iranian law, remains significantly underdeveloped. This study, which is interdisciplinary in nature and lies at the intersection of genetics, Islamic jurisprudence, and law, aims to elucidate the jurisprudential and legal foundations of protecting fetal genetic data privacy and to conduct a comparative analysis of Iranian legal frameworks with international documents and standards in this domain. The research, employing a qualitative, descriptive-analytical, and comparative approach, draws data from a review of jurisprudential texts, national laws, and international regulations, including the General Data Protection Regulation (GDPR) of the European Union and UNESCO declarations. The data are analyzed using qualitative content analysis methods. The findings indicate that fundamental principles of Islamic jurisprudence, such as the prohibition of espionage, the principle of no harm (la darar), the principle of human dignity, and the principle of trust (amanat), provide substantial theoretical support for safeguarding the privacy of fetal genetic data. International instruments, including the GDPR and the Oviedo Convention, offer clear frameworks for informed consent, data processing restrictions, data security, and the prohibition of genetic discrimination. The study suggests that by integrating Islamic jurisprudential principles with international standards, a comprehensive and contextually adapted model for protecting fetal genetic data privacy within the Iranian legal system can be established. In this regard, there is an increasing need for the formulation of independent and explicit regulations, particularly in determining the legal representative of the fetus, the principle of data minimization, technical-organizational security requirements, data governance, and restrictions on data transfer. [ABSTRACT FROM AUTHOR] – Name: Abstract Label: Group: Ab Data: <i>Copyright of Interdisciplinary Studies in the Humanities is the property of Interdisciplinary Studies in the Humanities and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.22035/isih.2026.5640.5224 Languages: – Code: per Text: Persian PhysicalDescription: Pagination: PageCount: 40 StartPage: 147 Subjects: – SubjectFull: Genetic privacy Type: general – SubjectFull: Data protection laws Type: general – SubjectFull: Legal doctrines Type: general – SubjectFull: Bioethics Type: general – SubjectFull: Legal representation Type: general – SubjectFull: Prenatal diagnosis Type: general Titles: – TitleFull: The fetus's right to the privacy of genetic data. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Karami, Mehnoush – PersonEntity: Name: NameFull: Zarvandi, Hossein IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 07 Text: Summer2026 Type: published Y: 2026 Identifiers: – Type: issn-print Value: 20084641 Numbering: – Type: volume Value: 18 – Type: issue Value: 3 Titles: – TitleFull: Interdisciplinary Studies in the Humanities Type: main |
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