Academic Journal
Evaluating Dysphagia Measures at End of Life: Implications for Quality-of-Life Assessment.
| Τίτλος: | Evaluating Dysphagia Measures at End of Life: Implications for Quality-of-Life Assessment. |
|---|---|
| Συγγραφείς: | Yonan, Sanora |
| Πηγή: | Perspectives of the ASHA Special Interest Groups; Aug2026, Vol. 11 Issue 4, p1381-1388, 8p |
| Θεματικοί όροι: | Palliative treatment, Health status indicators, Research evaluation, Head & neck cancer, Questionnaires, Symptom burden, Communicative disorders, Quality of life, Psychometrics, Health outcome assessment, Psychology of caregivers, Deglutition disorders, Patient participation |
| Περίληψη: | Background: Dysphagia is a common and distressing symptom experienced by individuals nearing the end of life (EoL), often impacting quality of life (QOL) through reduced enjoyment of food, loss of social connection, and emotional distress. Despite its prevalence, there remains a lack of validated, patient-reported outcome measures tailored for use in this vulnerable population. Method: This review article explores the potential appropriateness of three widely used dysphagia tools--the MD Anderson Dysphagia Inventory (MDADI), Eating Assessment Tool (EAT-10), and Swallowing Quality of Life Questionnaire (SWAL-QOL)--for assessing symptom burden and QOL in EoL settings. A literature review was conducted to evaluate the psychometric properties, clinical utility, and ethical implications of using these measures with seriously ill adults. Results: Findings highlight that while the MDADI is well-established in oncology, it lacks validation in noncancer populations and may be too lengthy for EoL use. The EAT-10 is efficient and broadly applied across settings, but primarily captures dysphagia severity rather than qOL impact. The SWAL-QOL is the only tool with evidence of use in EoL populations and offers comprehensive QOL assessment, though its length may pose challenges for patients with limited time and declining health. Ethical considerations, including the need for caregiver assistance and communication accommodations, are discussed. Discussion: This review article emphasizes the importance of selecting dysphagia tools that balance sensitivity, feasibility, and patient burden. Future research should prioritize validating adapted tools for surrogate completion and use with communication impaired individuals, ensuring that the experiences of all patients with dysphagia, especially those near the EoL, are accurately and respectfully captured. [ABSTRACT FROM AUTHOR] |
| Copyright of Perspectives of the ASHA Special Interest Groups is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Βάση Δεδομένων: | Complementary Index |
| FullText | Text: Availability: 0 |
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| Header | DbId: edb DbLabel: Complementary Index An: 196165774 RelevancyScore: 1162 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 1162.42456054688 |
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| Items | – Name: Title Label: Title Group: Ti Data: Evaluating Dysphagia Measures at End of Life: Implications for Quality-of-Life Assessment. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Yonan%2C+Sanora%22">Yonan, Sanora</searchLink> – Name: TitleSource Label: Source Group: Src Data: Perspectives of the ASHA Special Interest Groups; Aug2026, Vol. 11 Issue 4, p1381-1388, 8p – Name: Subject Label: Subject Terms Group: Su Data: <searchLink fieldCode="DE" term="%22Palliative+treatment%22">Palliative treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Health+status+indicators%22">Health status indicators</searchLink><br /><searchLink fieldCode="DE" term="%22Research+evaluation%22">Research evaluation</searchLink><br /><searchLink fieldCode="DE" term="%22Head+%26+neck+cancer%22">Head & neck cancer</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Symptom+burden%22">Symptom burden</searchLink><br /><searchLink fieldCode="DE" term="%22Communicative+disorders%22">Communicative disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Psychometrics%22">Psychometrics</searchLink><br /><searchLink fieldCode="DE" term="%22Health+outcome+assessment%22">Health outcome assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Deglutition+disorders%22">Deglutition disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+participation%22">Patient participation</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Background: Dysphagia is a common and distressing symptom experienced by individuals nearing the end of life (EoL), often impacting quality of life (QOL) through reduced enjoyment of food, loss of social connection, and emotional distress. Despite its prevalence, there remains a lack of validated, patient-reported outcome measures tailored for use in this vulnerable population. Method: This review article explores the potential appropriateness of three widely used dysphagia tools--the MD Anderson Dysphagia Inventory (MDADI), Eating Assessment Tool (EAT-10), and Swallowing Quality of Life Questionnaire (SWAL-QOL)--for assessing symptom burden and QOL in EoL settings. A literature review was conducted to evaluate the psychometric properties, clinical utility, and ethical implications of using these measures with seriously ill adults. Results: Findings highlight that while the MDADI is well-established in oncology, it lacks validation in noncancer populations and may be too lengthy for EoL use. The EAT-10 is efficient and broadly applied across settings, but primarily captures dysphagia severity rather than qOL impact. The SWAL-QOL is the only tool with evidence of use in EoL populations and offers comprehensive QOL assessment, though its length may pose challenges for patients with limited time and declining health. Ethical considerations, including the need for caregiver assistance and communication accommodations, are discussed. Discussion: This review article emphasizes the importance of selecting dysphagia tools that balance sensitivity, feasibility, and patient burden. Future research should prioritize validating adapted tools for surrogate completion and use with communication impaired individuals, ensuring that the experiences of all patients with dysphagia, especially those near the EoL, are accurately and respectfully captured. [ABSTRACT FROM AUTHOR] – Name: Abstract Label: Group: Ab Data: <i>Copyright of Perspectives of the ASHA Special Interest Groups is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1044/2026_PERSP-25-00190 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 8 StartPage: 1381 Subjects: – SubjectFull: Palliative treatment Type: general – SubjectFull: Health status indicators Type: general – SubjectFull: Research evaluation Type: general – SubjectFull: Head & neck cancer Type: general – SubjectFull: Questionnaires Type: general – SubjectFull: Symptom burden Type: general – SubjectFull: Communicative disorders Type: general – SubjectFull: Quality of life Type: general – SubjectFull: Psychometrics Type: general – SubjectFull: Health outcome assessment Type: general – SubjectFull: Psychology of caregivers Type: general – SubjectFull: Deglutition disorders Type: general – SubjectFull: Patient participation Type: general Titles: – TitleFull: Evaluating Dysphagia Measures at End of Life: Implications for Quality-of-Life Assessment. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Yonan, Sanora IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 08 Text: Aug2026 Type: published Y: 2026 Identifiers: – Type: issn-print Value: 2381473X Numbering: – Type: volume Value: 11 – Type: issue Value: 4 Titles: – TitleFull: Perspectives of the ASHA Special Interest Groups Type: main |
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