Academic Journal
Working while living with cystic fibrosis: Why symptom severity tells us little about employment outcomes?
| Τίτλος: | Working while living with cystic fibrosis: Why symptom severity tells us little about employment outcomes? |
|---|---|
| Συγγραφείς: | Pichonnaz D; University of Applied Sciences and Arts Western Switzerland, School of Social Work (HES-SO Valais-Wallis), Switzerland. Electronic address: david.pichonnaz@hevs.ch. |
| Πηγή: | Social science & medicine (1982) [Soc Sci Med] 2026 Sep; Vol. 405, pp. 119585. Date of Electronic Publication: 2026 Jul 11. |
| Τύπος έκδοσης: | Journal Article |
| Γλώσσα: | English |
| Στοιχεία περιοδικού: | Publisher: Pergamon Country of Publication: England NLM ID: 8303205 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-5347 (Electronic) Linking ISSN: 02779536 NLM ISO Abbreviation: Soc Sci Med Subsets: MEDLINE |
| Imprint Name(s): | Original Publication: Oxford ; New York : Pergamon, c1982- |
| Ιατρικοί όροι (MeSH): | Cystic Fibrosis*/psychology , Cystic Fibrosis*/complications , Employment*/psychology , Employment*/statistics & numerical data, Humans ; Switzerland ; Female ; Male ; Adult ; Severity of Illness Index ; Qualitative Research |
| Περίληψη: | This article examines the vocational and employment trajectories of people living with cystic fibrosis in French-speaking Switzerland. Drawing on qualitative data, it reveals that clinical severity alone is an ineffective predictor of these trajectories. These are dependent on the resources available within individuals' families. Furthermore, illness serves as a site of socialization: it fosters contrasting attitudes towards effort and pleasure. An ascetic orientation, characterized by discipline and long-term planning, fosters ambitious professional goals, whereas a hedonistic orientation cantered on immediate gratification inclines individuals towards more pleasure-oriented activities. The study also identifies four types of orientations to work: career-oriented, work-at-all-costs, withdrawal, and secondary gain. These types explain divergent employment outcomes. This article highlights the analytical yield of articulating Bourdieusian concepts of capital and dispositions with medical sociology's concern for the modes of adjustment to chronic illnesses. (Copyright © 2026 The Author. Published by Elsevier Ltd.. All rights reserved.) |
| Contributed Indexing: | Keywords: Bourdieu; Chronic illness; Cystic fibrosis; Illness experience; Vocational/employment attainment |
| Entry Date(s): | Date Created: 20260715 Date Completed: 20260826 Latest Revision: 20260826 |
| Update Code: | 20260827 |
| DOI: | 10.1016/j.socscimed.2026.119585 |
| PMID: | 42456463 |
| Βάση Δεδομένων: | MEDLINE |
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