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Survivor-identified barriers and facilitators to acute phase recovery following radical cystectomy.

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Title: Survivor-identified barriers and facilitators to acute phase recovery following radical cystectomy.
Authors: Marchetti KA; Department of Urology, University of Iowa, Iowa City, IA; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA. Electronic address: kathryn-marchetti@uiowa.edu., Asees A; School of Medicine, University of Pittsburgh, Pittsburgh, PA., Bokil AP; Mobile Sensing + Health Institute, University of Pittsburgh, Pittsburgh, PA., Medich M; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA., Durica KC; Mobile Sensing + Health Institute, University of Pittsburgh, Pittsburgh, PA., Rieker J; Survivor to Survivor Program, Bladder Cancer Advocacy Network, Bethesda, MD., Rak K; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA., Borza T; Department of Urology, University of Michigan, Ann Arbor, MI., Alcorn ML; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA., Davies BJ; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA., Low CA; School of Medicine, University of Pittsburgh, Pittsburgh, PA; Mobile Sensing + Health Institute, University of Pittsburgh, Pittsburgh, PA., Stensland KD; Department of Urology, University of Michigan, Ann Arbor, MI., Jacobs BL; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA.
Source: Urologic oncology [Urol Oncol] 2026 Jul; Vol. 44 (7), pp. 234-242. Date of Electronic Publication: 2026 May 19.
Publication Type: Journal Article
Language: English
Journal Info: Publisher: Elsevier Country of Publication: United States NLM ID: 9805460 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-2496 (Electronic) Linking ISSN: 10781439 NLM ISO Abbreviation: Urol Oncol Subsets: MEDLINE
Imprint Name(s): Publication: 2003- : Philadelphia, PA : Elsevier
Original Publication: New York, NY : Elsevier Science
MeSH Terms: Cystectomy*/methods , Urinary Bladder Neoplasms*/surgery , Cancer Survivors*/psychology, Humans ; Female ; Aged ; Male ; Middle Aged
Abstract: Objectives: To understand the unmet needs of bladder cancer survivors in the acute recovery after cystectomy and how remote monitoring may improve their care. These results are part of user-centered design studies on a remote monitoring recovery aid.
Methods: We invited bladder cancer survivors who underwent a radical cystectomy and their support persons from bladder cancer survivorship groups. We conducted semi-structured interviews regarding participants' experiences during recovery from cystectomy, their perspectives regarding unmet needs, and the resources they used during the perioperative period, emphasizing the 2 weeks following hospital discharge. Transcripts were coded using a deductive/inductive approach. Coded excerpts were summarized to develop themes and subthemes. Findings were refined as needed by consensus to accurately capture participants' experiences.
Results: A total of 20 bladder cancer survivors and 5 primary support persons were included. Patient participants were on average 3 years from their cystectomy. Barriers to acute recovery were categorized into system- and patient-level challenges, including difficulty connecting with knowledgeable providers and with information, as well as mental/emotional and physical hurdles. Three key facilitators to patients' acute recovery following cystectomy included identifying indicators of physical progress, facilitating access to provider recommendations, and implementing the survivor perspective into recovery support.
Conclusions: This study classified barriers and facilitators to cystectomy recovery. The majority of participants expressed interest in remote monitoring programs. Opportunities exist for stakeholders to improve the acute recovery experience for cystectomy patients through mobile interventions delivered via smartphones and wearable devices.
(Copyright © 2026 Elsevier Inc. All rights reserved.)
Competing Interests: Declaration of competing interest Kristian Stensland reports a relationship with Johnson and Johnson that includes consulting or advisory. And other authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
Contributed Indexing: Keywords: Bladder cancer; Cystectomy; Postoperative recovery; Qualitative; Remote monitoring; User-centered design
Entry Date(s): Date Created: 20260518 Date Completed: 20260612 Latest Revision: 20260612
Update Code: 20260613
DOI: 10.1016/j.urolonc.2026.04.293
PMID: 42150484
Database: MEDLINE
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  Data: Survivor-identified barriers and facilitators to acute phase recovery following radical cystectomy.
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  Data: <searchLink fieldCode="AU" term="%22Marchetti+KA%22">Marchetti KA</searchLink>; Department of Urology, University of Iowa, Iowa City, IA; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA. Electronic address: kathryn-marchetti@uiowa.edu.<br /><searchLink fieldCode="AU" term="%22Asees+A%22">Asees A</searchLink>; School of Medicine, University of Pittsburgh, Pittsburgh, PA.<br /><searchLink fieldCode="AU" term="%22Bokil+AP%22">Bokil AP</searchLink>; Mobile Sensing + Health Institute, University of Pittsburgh, Pittsburgh, PA.<br /><searchLink fieldCode="AU" term="%22Medich+M%22">Medich M</searchLink>; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA.<br /><searchLink fieldCode="AU" term="%22Durica+KC%22">Durica KC</searchLink>; Mobile Sensing + Health Institute, University of Pittsburgh, Pittsburgh, PA.<br /><searchLink fieldCode="AU" term="%22Rieker+J%22">Rieker J</searchLink>; Survivor to Survivor Program, Bladder Cancer Advocacy Network, Bethesda, MD.<br /><searchLink fieldCode="AU" term="%22Rak+K%22">Rak K</searchLink>; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA.<br /><searchLink fieldCode="AU" term="%22Borza+T%22">Borza T</searchLink>; Department of Urology, University of Michigan, Ann Arbor, MI.<br /><searchLink fieldCode="AU" term="%22Alcorn+ML%22">Alcorn ML</searchLink>; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA.<br /><searchLink fieldCode="AU" term="%22Davies+BJ%22">Davies BJ</searchLink>; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA.<br /><searchLink fieldCode="AU" term="%22Low+CA%22">Low CA</searchLink>; School of Medicine, University of Pittsburgh, Pittsburgh, PA; Mobile Sensing + Health Institute, University of Pittsburgh, Pittsburgh, PA.<br /><searchLink fieldCode="AU" term="%22Stensland+KD%22">Stensland KD</searchLink>; Department of Urology, University of Michigan, Ann Arbor, MI.<br /><searchLink fieldCode="AU" term="%22Jacobs+BL%22">Jacobs BL</searchLink>; Division of Health Services, Department of Urology, University of Pittsburgh, Pittsburgh, PA.
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  Data: <searchLink fieldCode="JN" term="%229805460%22">Urologic oncology</searchLink> [Urol Oncol] 2026 Jul; Vol. 44 (7), pp. 234-242. <i>Date of Electronic Publication: </i>2026 May 19.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier%22">Elsevier </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>9805460 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1873-2496 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2210781439%22">10781439 </searchLink><i>NLM ISO Abbreviation: </i>Urol Oncol <i>Subsets: </i>MEDLINE
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  Data: <i>Publication</i>: 2003- : Philadelphia, PA : Elsevier<br /><i>Original Publication</i>: New York, NY : Elsevier Science
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  Data: <searchLink fieldCode="MM" term="%22Cystectomy%22">Cystectomy*</searchLink>/<searchLink fieldCode="MM" term="%22Cystectomy+methods%22">methods</searchLink> <br /><searchLink fieldCode="MM" term="%22Urinary+Bladder+Neoplasms%22">Urinary Bladder Neoplasms*</searchLink>/<searchLink fieldCode="MM" term="%22Urinary+Bladder+Neoplasms+surgery%22">surgery</searchLink> <br /><searchLink fieldCode="MM" term="%22Cancer+Survivors%22">Cancer Survivors*</searchLink>/<searchLink fieldCode="MM" term="%22Cancer+Survivors+psychology%22">psychology</searchLink><br /><searchLink fieldCode="MH" term="%22Humans%22">Humans</searchLink> ; <searchLink fieldCode="MH" term="%22Female%22">Female</searchLink> ; <searchLink fieldCode="MH" term="%22Aged%22">Aged</searchLink> ; <searchLink fieldCode="MH" term="%22Male%22">Male</searchLink> ; <searchLink fieldCode="MH" term="%22Middle+Aged%22">Middle Aged</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Objectives: To understand the unmet needs of bladder cancer survivors in the acute recovery after cystectomy and how remote monitoring may improve their care. These results are part of user-centered design studies on a remote monitoring recovery aid.<br />Methods: We invited bladder cancer survivors who underwent a radical cystectomy and their support persons from bladder cancer survivorship groups. We conducted semi-structured interviews regarding participants' experiences during recovery from cystectomy, their perspectives regarding unmet needs, and the resources they used during the perioperative period, emphasizing the 2 weeks following hospital discharge. Transcripts were coded using a deductive/inductive approach. Coded excerpts were summarized to develop themes and subthemes. Findings were refined as needed by consensus to accurately capture participants' experiences.<br />Results: A total of 20 bladder cancer survivors and 5 primary support persons were included. Patient participants were on average 3 years from their cystectomy. Barriers to acute recovery were categorized into system- and patient-level challenges, including difficulty connecting with knowledgeable providers and with information, as well as mental/emotional and physical hurdles. Three key facilitators to patients' acute recovery following cystectomy included identifying indicators of physical progress, facilitating access to provider recommendations, and implementing the survivor perspective into recovery support.<br />Conclusions: This study classified barriers and facilitators to cystectomy recovery. The majority of participants expressed interest in remote monitoring programs. Opportunities exist for stakeholders to improve the acute recovery experience for cystectomy patients through mobile interventions delivered via smartphones and wearable devices.<br /> (Copyright © 2026 Elsevier Inc. All rights reserved.)
– Name: Abstract
  Label: Competing Interests
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  Data: Declaration of competing interest Kristian Stensland reports a relationship with Johnson and Johnson that includes consulting or advisory. And other authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
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