Academic Journal
Pilot Validation of a Standardized In- and Outpatient Data Collection Tool for Burn Injury Surveillance.
| Τίτλος: | Pilot Validation of a Standardized In- and Outpatient Data Collection Tool for Burn Injury Surveillance. |
|---|---|
| Συγγραφείς: | Attwells S; Temerty Faculty of Medicine, University of Toronto, 149 College Street, 5th Floor, Toronto, Ontario M5T 1P5, Canada., Faour S; Division of Plastic, Reconstructive & Aesthetic Surgery, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G1X8, Canada., Kim CY; Division of Plastic, Reconstructive & Aesthetic Surgery, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G1X8, Canada., Correia A; Division of Plastic, Reconstructive & Aesthetic Surgery, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G1X8, Canada., Joachim K; Division of Plastic, Reconstructive & Aesthetic Surgery, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G1X8, Canada., Gus E; Temerty Faculty of Medicine, University of Toronto, 149 College Street, 5th Floor, Toronto, Ontario M5T 1P5, Canada.; Division of Plastic, Reconstructive & Aesthetic Surgery, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G1X8, Canada.; SickKids Research Institute, 686 Bay St., Toronto, Ontario M5G 0A4, Canada. |
| Πηγή: | Journal of burn care & research : official publication of the American Burn Association [J Burn Care Res] 2026 Jul 06; Vol. 47 (4), pp. 1245-1255. |
| Τύπος έκδοσης: | Journal Article; Validation Study |
| Γλώσσα: | English |
| Στοιχεία περιοδικού: | Publisher: Oxford University Press Country of Publication: England NLM ID: 101262774 Publication Model: Print Cited Medium: Internet ISSN: 1559-0488 (Electronic) Linking ISSN: 1559047X NLM ISO Abbreviation: J Burn Care Res Subsets: MEDLINE |
| Imprint Name(s): | Publication: 2018- : Oxford : Oxford University Press Original Publication: Hagerstown, MD : Lippincott Williams & Wilkins, c2006- |
| Ιατρικοί όροι (MeSH): | Burns*/epidemiology , Burns*/therapy , Data Collection*/standards , Data Collection*/methods , Population Surveillance*/methods , Registries*, Humans ; Female ; Pilot Projects ; Male ; Child ; Retrospective Studies ; Reproducibility of Results ; Adolescent ; Child, Preschool ; Adult ; Outpatients ; Infant ; Middle Aged |
| Περίληψη: | Burn registries are critical in understanding, managing, and addressing the complexities of burn injuries and care by providing comprehensive data on injury patterns, treatment modalities, and outcomes. Current registries focus on the acute phase of inpatient burn care and lack data on outpatient and long-term treatment outcomes. This study aimed to validate the Burn Injury Surveillance Tool (BIST), a pilot electronic data collection tool designed to standardize burn data collection that includes both inpatient and outpatient data. Developed based on data dictionaries from established international registries, the tool includes 6 key sections capturing patient information, injury etiology, injury severity, acute treatment, quality-of-care indicators, and long-term outcomes. Validation involved 2 non-burn-specialized participants and 1 burn-specialized participant using the tool to extract data from 45 retrospective burn cases at the Hospital for Sick Children, Toronto, Canada. Inter-rater reliability was assessed through percent agreement and kappa statistics. Our results indicate high percent agreement and strong inter-rater reliability for most variables, particularly patient demographics and burn characteristics. Challenges included discrepancies in subjective measures such as injury circumstances and specific total burn surface area values, which highlighted areas for tool refinement. The creation and validation of the BIST provided valuable insights into how to incorporate outpatient data into new and existing burn registries. Beyond its immediate findings, this study offers a methodological framework for validating integrated in- and outpatient datasets that can be adapted for other clinical registries, supporting more complete and interoperable burn registry designs. (© The Author(s) 2026. Published by Oxford University Press on behalf of the American Burn Association. All rights reserved. For commercial re-use, please contact reprints@oup.com for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact journals.permissions@oup.com.) |
| Contributed Indexing: | Keywords: burn injury; burn registry; data collection tool; dataset; outpatient; validation |
| Entry Date(s): | Date Created: 20260508 Date Completed: 20260707 Latest Revision: 20260707 |
| Update Code: | 20260708 |
| DOI: | 10.1093/jbcr/irag073 |
| PMID: | 42102169 |
| Βάση Δεδομένων: | MEDLINE |
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