Academic Journal
Agreement between parent- and self-report of executive functioning in childhood-onset systemic lupus erythematosus: implications for clinical practice.
| Τίτλος: | Agreement between parent- and self-report of executive functioning in childhood-onset systemic lupus erythematosus: implications for clinical practice. |
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| Συγγραφείς: | Ledochowski J; Neurosciences and Mental Health, Research Institute, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada., Mossad SI; Department of Psychology, The Hospital for Sick Children, Toronto, ON, Canada., El Tal T; Divsion of Rheumatology and Dermatology, Department of Pediatrics, Children's Hospital of Eastern Ontario (CHEO), Ottawa, ON, Canada.; Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada., Mohamed I; Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada., Ng L; Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada., Jeyanathan A; Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada., Davis A; Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada., Hiraki LT; Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada., Levy D; Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada., Danguecan A; Department of Psychology, The Hospital for Sick Children, Toronto, ON, Canada., Knight A; Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada. |
| Πηγή: | Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence [Child Neuropsychol] 2026 Aug; Vol. 32 (6), pp. 801-820. Date of Electronic Publication: 2026 Jan 25. |
| Τύπος έκδοσης: | Journal Article |
| Γλώσσα: | English |
| Στοιχεία περιοδικού: | Publisher: Routledge Country of Publication: England NLM ID: 9512515 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1744-4136 (Electronic) Linking ISSN: 09297049 NLM ISO Abbreviation: Child Neuropsychol Subsets: MEDLINE |
| Imprint Name(s): | Publication: 2013- : London : Routledge Original Publication: Lisse, The Netherlands : Swets & Zeitlinger, c1995- |
| Ιατρικοί όροι (MeSH): | Executive Function*/physiology , Lupus Erythematosus, Systemic*/psychology , Lupus Erythematosus, Systemic*/complications , Parents* , Self Report*, Humans ; Adolescent ; Female ; Male ; Child ; Neuropsychological Tests ; Age of Onset |
| Περίληψη: | Systemic lupus erythematosus (SLE) is a chronic autoimmune disorder, with childhood onset (cSLE) impacting 15-20% of all individuals with SLE. Cognitive dysfunction, including difficulties with executive functioning (EF), affects 30-70% of individuals with cSLE. EF describes cognitive processes that support goal-directed behavior and contributes to capacity for disease self-management and quality of life. Standardized questionnaires provide clinically valuable information about parental observations and adolescent's self-awareness, however, agreement between adolescent and parent ratings is not yet well understood in cSLE. Thirty-six adolescent-parent dyads completed the Behavior Inventory of Executive Function, Second Edition (BRIEF-2). Intraclass correlation coefficients (ICCs) indicated moderate agreement among most indices and subscales, with the exception of the Emotional Regulation Index and Shift subscale. However, mean T-score comparisons showed that adolescents rated themselves as having significantly greater difficulties compared to parent report on the Global Executive Composite, Behavioral Regulation Index, and Cognitive Regulation Index and the Inhibit, Emotional Control, Working Memory and Planning/Organization subscales. Our findings demonstrate that alongside parental report, considering the adolescent's own perspective of their cognitive functioning is an essential part of assessing EF in cSLE. |
| Contributed Indexing: | Keywords: Lupus erythematosus, systemic; adolescent; executive function; parents; surveys and questionnaires |
| Entry Date(s): | Date Created: 20260125 Date Completed: 20260730 Latest Revision: 20260730 |
| Update Code: | 20260730 |
| DOI: | 10.1080/09297049.2026.2618198 |
| PMID: | 41582086 |
| Βάση Δεδομένων: | MEDLINE |
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