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Measuring health and well-being from preconception to early life in Indigenous populations: a scoping review protocol.

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Τίτλος: Measuring health and well-being from preconception to early life in Indigenous populations: a scoping review protocol.
Συγγραφείς: Sjoblom E; Collaborative Applied Research for Equity in Health Policy and Systems (CARE) Research Lab, School of Public Health, University of Alberta, 3-081 Dianne and Irving Kipnes Health Research Academy, 11405 - 87 Ave, Edmonton, AB, T6G 1C9, Canada. jesjoblo@ualberta.ca., Montesanti S; Collaborative Applied Research for Equity in Health Policy and Systems (CARE) Research Lab, School of Public Health, University of Alberta, 3-081 Dianne and Irving Kipnes Health Research Academy, 11405 - 87 Ave, Edmonton, AB, T6G 1C9, Canada., Verstraeten BSE; Collaborative Applied Research for Equity in Health Policy and Systems (CARE) Research Lab, School of Public Health, University of Alberta, 3-081 Dianne and Irving Kipnes Health Research Academy, 11405 - 87 Ave, Edmonton, AB, T6G 1C9, Canada.
Πηγή: Systematic reviews [Syst Rev] 2025 Dec 09; Vol. 15 (1), pp. 10. Date of Electronic Publication: 2025 Dec 09.
Τύπος έκδοσης: Journal Article
Γλώσσα: English
Στοιχεία περιοδικού: Publisher: BioMed Central Country of Publication: England NLM ID: 101580575 Publication Model: Electronic Cited Medium: Internet ISSN: 2046-4053 (Electronic) Linking ISSN: 20464053 NLM ISO Abbreviation: Syst Rev Subsets: MEDLINE
Imprint Name(s): Original Publication: London : BioMed Central
Ιατρικοί όροι (MeSH): Health Status* , Population Groups* , Indigenous Peoples*, Humans ; Scoping Reviews as Topic ; Pregnancy ; New Zealand ; Canada ; Female ; Australia ; Research Design ; Health Services, Indigenous
Περίληψη: Background: Indigenous Peoples face a notable absence of standardized equity indicators for non-communicable diseases. Existing measurement models are rooted in Euro-Western biomedical frameworks that overlook Indigenous worldviews, definitions of health, and relational approaches to wellness. These models remain narrow in scope-focused on disease-specific indicators and treatment pathways-and reinforce deficit-oriented perspectives rather than advancing holistic, strengths-based understandings of well-being. This scoping review aims to identify and synthesize research that utilizes, assesses, or validates measures of wellness, health, and supportive early environments in Indigenous populations.
Methods: This review will use an Indigenous-informed scoping review study methodology, which grounds each stage of the review process in Indigenous values and community guidance. A systematic search of global academic and grey literature databases will be conducted to identify relevant literature. Selected studies will include those that assess or validate the measurement of health and wellness spanning from preconception through pregnancy, infancy, and early childhood within Indigenous populations in Canada, Australia, New Zealand, and the USA. Articles will be screened and assessed for eligibility by two reviewers. From eligible articles, data including author and year of publication; source country; target population; objectives; name(s) of instrument(s); type(s) of measure(s); development/adaptation/validation process; main outcomes; community engagement; quality assessment; and other descriptive variables will be extracted. A thematic analysis approach guided by an Indigenous Community Advisory Committee will be applied to synthesize the findings.
Discussion: This scoping review aims to identify and synthesize the global literature on tools and instruments to measure health, well-being, and supportive early environments in Indigenous populations. This work aims to inform the development of Indigenous wellness indicators for the Indigenous Healthy Life Trajectories Initiative (I-HeLTI) Cohort Research Study funded by the Canadian Institutes of Health Research. Traditional population health monitoring methods, rooted in Western paradigms, have often perpetuated colonial biases and overlook unique contexts of Indigenous communities. This review seeks to bridge knowledge gaps in developing and validating Indigenous wellness indicators that align with Indigenous values and aspirations. The findings are expected to advance ethical approaches to health measurement in Indigenous populations, supporting data sovereignty and culturally inclusive wellness indicators.
Systematic Review Registration: Open Science Framework https://osf.io/yfv8m .
(© 2025. The Author(s).)
Competing Interests: Declarations. Ethics approval and consent to participate: Not applicable. Consent for publication: Not applicable. Competing interests: The authors declare that they have no competing interests.
References: BMC Int Health Hum Rights. 2007 Dec 20;7:9. (PMID: 18096029)
BMJ. 2011 Jul 26;343:d4163. (PMID: 21791490)
Lancet. 2005 Apr 30-May 6;365(9470):1531-2. (PMID: 15875285)
Int J Equity Health. 2020 Jun 22;19(1):101. (PMID: 32571404)
Bioethics. 2013 Jun;27(5):271-9. (PMID: 22420910)
Front Psychiatry. 2021 Dec 01;12:691659. (PMID: 34925080)
BMJ. 1990 Nov 17;301(6761):1111. (PMID: 2252919)
Ann N Y Acad Sci. 1999;896:85-95. (PMID: 10681890)
J Pediatr. 2000 Mar;136(3):365-9. (PMID: 10700694)
Curr Opin Neurobiol. 2015 Feb;30:31-7. (PMID: 25218938)
Psychol Med. 2015 May;45(7):1551-63. (PMID: 25534496)
Lancet. 1993 Apr 10;341(8850):938-41. (PMID: 8096277)
Lancet. 2009 Jul 4;374(9683):65-75. (PMID: 19577695)
Int J Environ Res Public Health. 2021 May 28;18(11):. (PMID: 34071636)
Qual Life Res. 2010 May;19(4):539-49. (PMID: 20169472)
Women Birth. 2021 Feb;34(1):69-76. (PMID: 32115381)
J Clin Med. 2022 Nov 01;11(21):. (PMID: 36362713)
Int J Environ Res Public Health. 2024 Dec 31;22(1):. (PMID: 39857496)
Can J Public Health. 1987 Jul-Aug;78(4):219-22. (PMID: 3651950)
BMC Prim Care. 2023 Feb 17;24(1):51. (PMID: 36803458)
N Engl J Med. 2008 Jul 3;359(1):61-73. (PMID: 18596274)
Soc Sci Med. 2017 Mar;176:93-112. (PMID: 28135694)
Clin Child Psychol Psychiatry. 2014 Apr;19(2):260-72. (PMID: 23737609)
Int J Community Wellbeing. 2021;4(3):415-441. (PMID: 34790890)
Am J Psychiatry. 2017 Apr 1;174(4):319-328. (PMID: 27838934)
BMC Med Res Methodol. 2020 Apr 10;20(1):79. (PMID: 32276606)
SSM Popul Health. 2021 Aug 18;15:100899. (PMID: 34584930)
Ann Intern Med. 2018 Oct 2;169(7):467-473. (PMID: 30178033)
Qual Life Res. 2012 May;21(4):651-7. (PMID: 21732199)
Syst Rev. 2024 Jul 15;13(1):181. (PMID: 39010189)
Qual Life Res. 2016 Sep;25(9):2161-78. (PMID: 27165149)
Syst Rev. 2024 Feb 29;13(1):78. (PMID: 38424631)
Rural Remote Health. 2007 Jul-Sep;7(3):771. (PMID: 17896867)
BMC Prim Care. 2025 Jul 11;26(1):221. (PMID: 40646438)
Contributed Indexing: Keywords: Early child development; Health measurement; Healthy life trajectories; Indigenous populations; Scoping review
Entry Date(s): Date Created: 20251209 Date Completed: 20260114 Latest Revision: 20260621
Update Code: 20260622
PubMed Central ID: PMC12801813
DOI: 10.1186/s13643-025-03014-8
PMID: 41366485
Βάση Δεδομένων: MEDLINE
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  Data: Background: Indigenous Peoples face a notable absence of standardized equity indicators for non-communicable diseases. Existing measurement models are rooted in Euro-Western biomedical frameworks that overlook Indigenous worldviews, definitions of health, and relational approaches to wellness. These models remain narrow in scope-focused on disease-specific indicators and treatment pathways-and reinforce deficit-oriented perspectives rather than advancing holistic, strengths-based understandings of well-being. This scoping review aims to identify and synthesize research that utilizes, assesses, or validates measures of wellness, health, and supportive early environments in Indigenous populations.<br />Methods: This review will use an Indigenous-informed scoping review study methodology, which grounds each stage of the review process in Indigenous values and community guidance. A systematic search of global academic and grey literature databases will be conducted to identify relevant literature. Selected studies will include those that assess or validate the measurement of health and wellness spanning from preconception through pregnancy, infancy, and early childhood within Indigenous populations in Canada, Australia, New Zealand, and the USA. Articles will be screened and assessed for eligibility by two reviewers. From eligible articles, data including author and year of publication; source country; target population; objectives; name(s) of instrument(s); type(s) of measure(s); development/adaptation/validation process; main outcomes; community engagement; quality assessment; and other descriptive variables will be extracted. A thematic analysis approach guided by an Indigenous Community Advisory Committee will be applied to synthesize the findings.<br />Discussion: This scoping review aims to identify and synthesize the global literature on tools and instruments to measure health, well-being, and supportive early environments in Indigenous populations. This work aims to inform the development of Indigenous wellness indicators for the Indigenous Healthy Life Trajectories Initiative (I-HeLTI) Cohort Research Study funded by the Canadian Institutes of Health Research. Traditional population health monitoring methods, rooted in Western paradigms, have often perpetuated colonial biases and overlook unique contexts of Indigenous communities. This review seeks to bridge knowledge gaps in developing and validating Indigenous wellness indicators that align with Indigenous values and aspirations. The findings are expected to advance ethical approaches to health measurement in Indigenous populations, supporting data sovereignty and culturally inclusive wellness indicators.<br />Systematic Review Registration: Open Science Framework https://osf.io/yfv8m .<br /> (© 2025. The Author(s).)
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  Data: Declarations. Ethics approval and consent to participate: Not applicable. Consent for publication: Not applicable. Competing interests: The authors declare that they have no competing interests.
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  Data: BMC Int Health Hum Rights. 2007 Dec 20;7:9. (PMID: <searchLink fieldCode="PM" term="%2218096029%22">18096029)</searchLink><br />BMJ. 2011 Jul 26;343:d4163. (PMID: <searchLink fieldCode="PM" term="%2221791490%22">21791490)</searchLink><br />Lancet. 2005 Apr 30-May 6;365(9470):1531-2. (PMID: <searchLink fieldCode="PM" term="%2215875285%22">15875285)</searchLink><br />Int J Equity Health. 2020 Jun 22;19(1):101. (PMID: <searchLink fieldCode="PM" term="%2232571404%22">32571404)</searchLink><br />Bioethics. 2013 Jun;27(5):271-9. (PMID: <searchLink fieldCode="PM" term="%2222420910%22">22420910)</searchLink><br />Front Psychiatry. 2021 Dec 01;12:691659. (PMID: <searchLink fieldCode="PM" term="%2234925080%22">34925080)</searchLink><br />BMJ. 1990 Nov 17;301(6761):1111. (PMID: <searchLink fieldCode="PM" term="%222252919%22">2252919)</searchLink><br />Ann N Y Acad Sci. 1999;896:85-95. (PMID: <searchLink fieldCode="PM" term="%2210681890%22">10681890)</searchLink><br />J Pediatr. 2000 Mar;136(3):365-9. (PMID: <searchLink fieldCode="PM" term="%2210700694%22">10700694)</searchLink><br />Curr Opin Neurobiol. 2015 Feb;30:31-7. (PMID: <searchLink fieldCode="PM" term="%2225218938%22">25218938)</searchLink><br />Psychol Med. 2015 May;45(7):1551-63. (PMID: <searchLink fieldCode="PM" term="%2225534496%22">25534496)</searchLink><br />Lancet. 1993 Apr 10;341(8850):938-41. (PMID: <searchLink fieldCode="PM" term="%228096277%22">8096277)</searchLink><br />Lancet. 2009 Jul 4;374(9683):65-75. (PMID: <searchLink fieldCode="PM" term="%2219577695%22">19577695)</searchLink><br />Int J Environ Res Public Health. 2021 May 28;18(11):. (PMID: <searchLink fieldCode="PM" term="%2234071636%22">34071636)</searchLink><br />Qual Life Res. 2010 May;19(4):539-49. (PMID: <searchLink fieldCode="PM" term="%2220169472%22">20169472)</searchLink><br />Women Birth. 2021 Feb;34(1):69-76. (PMID: <searchLink fieldCode="PM" term="%2232115381%22">32115381)</searchLink><br />J Clin Med. 2022 Nov 01;11(21):. (PMID: <searchLink fieldCode="PM" term="%2236362713%22">36362713)</searchLink><br />Int J Environ Res Public Health. 2024 Dec 31;22(1):. (PMID: <searchLink fieldCode="PM" term="%2239857496%22">39857496)</searchLink><br />Can J Public Health. 1987 Jul-Aug;78(4):219-22. (PMID: <searchLink fieldCode="PM" term="%223651950%22">3651950)</searchLink><br />BMC Prim Care. 2023 Feb 17;24(1):51. (PMID: <searchLink fieldCode="PM" term="%2236803458%22">36803458)</searchLink><br />N Engl J Med. 2008 Jul 3;359(1):61-73. (PMID: <searchLink fieldCode="PM" term="%2218596274%22">18596274)</searchLink><br />Soc Sci Med. 2017 Mar;176:93-112. (PMID: <searchLink fieldCode="PM" term="%2228135694%22">28135694)</searchLink><br />Clin Child Psychol Psychiatry. 2014 Apr;19(2):260-72. (PMID: <searchLink fieldCode="PM" term="%2223737609%22">23737609)</searchLink><br />Int J Community Wellbeing. 2021;4(3):415-441. (PMID: <searchLink fieldCode="PM" term="%2234790890%22">34790890)</searchLink><br />Am J Psychiatry. 2017 Apr 1;174(4):319-328. (PMID: <searchLink fieldCode="PM" term="%2227838934%22">27838934)</searchLink><br />BMC Med Res Methodol. 2020 Apr 10;20(1):79. (PMID: <searchLink fieldCode="PM" term="%2232276606%22">32276606)</searchLink><br />SSM Popul Health. 2021 Aug 18;15:100899. (PMID: <searchLink fieldCode="PM" term="%2234584930%22">34584930)</searchLink><br />Ann Intern Med. 2018 Oct 2;169(7):467-473. (PMID: <searchLink fieldCode="PM" term="%2230178033%22">30178033)</searchLink><br />Qual Life Res. 2012 May;21(4):651-7. (PMID: <searchLink fieldCode="PM" term="%2221732199%22">21732199)</searchLink><br />Syst Rev. 2024 Jul 15;13(1):181. (PMID: <searchLink fieldCode="PM" term="%2239010189%22">39010189)</searchLink><br />Qual Life Res. 2016 Sep;25(9):2161-78. (PMID: <searchLink fieldCode="PM" term="%2227165149%22">27165149)</searchLink><br />Syst Rev. 2024 Feb 29;13(1):78. (PMID: <searchLink fieldCode="PM" term="%2238424631%22">38424631)</searchLink><br />Rural Remote Health. 2007 Jul-Sep;7(3):771. (PMID: <searchLink fieldCode="PM" term="%2217896867%22">17896867)</searchLink><br />BMC Prim Care. 2025 Jul 11;26(1):221. (PMID: <searchLink fieldCode="PM" term="%2240646438%22">40646438)</searchLink>
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