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Cultural and contextual relevance of the Indigenous data in the Canadian longitudinal study on aging.

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Τίτλος: Cultural and contextual relevance of the Indigenous data in the Canadian longitudinal study on aging.
Συγγραφείς: Spiro GM; Institute for Health Policy, Management and Evaluation, University of Toronto, 155 College St 4 Floor, Toronto, ON, Canada. grace.spiro@utoronto.ca., O'Connell ME; Department of Psychology & Health Studies, University of Saskatchewan, 9 Campus Dr, Saskatoon, SK, Canada., Ryan C; Native Women's Association of Canada, 85 Albert St, Ottawa, ON, Canada., Warren L; Women's College Research Institute, Women's College Hospital, Toronto, ON, Canada., Walker JD; Department of Health Research Methods, Evidence, and Impact, McMaster University, MDCL 3510. 1280 Main Street West, Hamilton, ON, Canada.
Συλλογικό Έργο: Native Women’s Association of Canada (NWAC)
Πηγή: Canadian journal of public health = Revue canadienne de sante publique [Can J Public Health] 2026 Apr; Vol. 117 (2), pp. 341-349. Date of Electronic Publication: 2025 Aug 19.
Τύπος έκδοσης: Journal Article
Γλώσσα: English
Στοιχεία περιοδικού: Publisher: Springer Nature Country of Publication: Switzerland NLM ID: 0372714 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1920-7476 (Electronic) Linking ISSN: 00084263 NLM ISO Abbreviation: Can J Public Health Subsets: MEDLINE
Imprint Name(s): Publication: Switzerland : Springer Nature
Original Publication: Ottawa : Canadian Public Health Association
Ιατρικοί όροι (MeSH): Aging*/ethnology , Indians, North American*/statistics & numerical data , Indians, North American*/psychology , Inuit*/statistics & numerical data , Cultural Characteristics*, Humans ; Canada ; Longitudinal Studies ; Aged ; Female ; Male ; Aged, 80 and over ; Middle Aged
Περίληψη: Objectives: The CLSA is a national data platform for aging research that used epidemiology-based sampling methods and explicitly excluded people living on First Nations Reserves and other provincial First Nations settlements as possible CLSA participants. As such, the CLSA research approach did not use Indigenous community engagement. Nevertheless, the CLSA sample includes a sizeable subsample of participants who self-identified as First Nations, Métis, or Inuit. This project seeks to describe the self-identified Indigenous subsample of the CLSA from the baseline data collection and interpret that description with the aid of an Elder Advisory Circle.
Methods: We conducted a descriptive analysis of the self-identified Indigenous subsample of the CLSA from the baseline data collection. The analysis was presented to an Elder Advisory Circle for consultation.
Results: The lack of community-engaged approaches to Indigenous research and sampling approaches appears to have resulted in a sociodemographic profile of older Indigenous Peoples that does not match the lived experience of the Elder Advisory Circle and contrasts with other data available on Indigenous Peoples in Canada. We feel the existing CLSA data does not reflect the sociodemographic profile of older Indigenous Peoples.
Conclusion: We use this community consultation process to provide recommendations for the appropriate use of the Indigenous-identified data in the CLSA, and we conclude by recommending great caution when using the data from the Indigenous subsample in the CLSA data.
(© 2025. The Author(s).)
Competing Interests: Declarations. Ethics approval: Ethics approval for this study was attained through Laurentian University Research Ethics Board (Laurentian University, REB #6017270). Conflict of interest: The authors declare no competing interests. Disclaimer: The opinions expressed in this manuscript are the author’s own and do not reflect the views of the Canadian Longitudinal Study on Aging.
References: Int J Epidemiol. 2019 Dec 1;48(6):1752-1753j. (PMID: 31633757)
Can J Public Health. 2020 Dec;111(6):826-830. (PMID: 33289057)
J Gerontol B Psychol Sci Soc Sci. 2017 Mar 01;72(2):248-258. (PMID: 27729385)
Can J Aging. 2009 Sep;28(3):221-9. (PMID: 19860977)
Front Genet. 2022 Mar 21;13:823309. (PMID: 35386282)
Stat J IAOS. 2015;31(1):67-87. (PMID: 26793283)
J Cross Cult Gerontol. 2001;16(2):127-55. (PMID: 14617986)
Int J Popul Data Sci. 2021 Jun 22;6(1):1417. (PMID: 34212119)
J Health Serv Res Policy. 2024 Jul;29(3):210-221. (PMID: 38099443)
Eur J Ageing. 2022 Jan 12;19(3):775-787. (PMID: 35035341)
CJC Open. 2019 Oct 05;1(6):282-288. (PMID: 32159122)
Lancet. 2017 Nov 4;390(10107):2022-2023. (PMID: 29115232)
Contributed Indexing: Keywords: CLSA; Data sovereignty; Indigenous-identified data
Local Abstract: [Publisher, French] RéSUMé: OBJECTIFS: L’Étude longitudinale canadienne sur le vieillissement (ÉLCV) est une plateforme nationale de données de recherche sur le vieillissement qui utilise des techniques d’échantillonnage fondées sur l’épidémiologie et qui exclut explicitement comme participants possibles les personnes vivant dans les réserves des Premières Nations et dans d’autres peuplements provinciaux de Premières Nations. De ce fait, l’approche de recherche de l’ÉLCV ne fait pas appel à la participation des communautés autochtones. Néanmoins, l’échantillon de l’ÉLCV inclut un sous-ensemble appréciable de participants qui s’identifient comme étant membres des Premières Nations, Métis ou Inuits. Notre projet visait à décrire ce sous-ensemble basé sur la collecte des données de référence et à interpréter cette description avec l’aide d’un cercle consultatif d’aînés. MéTHODES: Nous avons effectué une analyse descriptive du sous-ensemble de personnes s’identifiant comme étant autochtones dans l’ÉLCV basé sur la collecte des données de référence. Nous avons ensuite présenté notre analyse à un cercle consultatif d’aînés. RéSULTATS: L’absence d’approches de recherche axées sur les communautés autochtones et d’approches d’échantillonnage semble avoir donné un profil sociodémographique des personnes âgées autochtones qui ne correspond pas au vécu du cercle consultatif d’aînés et qui tranche avec les autres données disponibles sur les personnes autochtones au Canada. Nous jugeons que les données existantes de l’ÉLCV ne reflètent pas le profil sociodémographique des personnes âgées autochtones. CONCLUSION: Nous avons utilisé ce processus de consultation des communautés pour formuler des recommandations sur l’usage approprié des données sur l’identité autochtone dans l’ÉLCV; en conclusion, nous recommandons d’utiliser avec une extrême prudence les données du sous-ensemble autochtone des données de l’ÉLCV.
Entry Date(s): Date Created: 20250819 Date Completed: 20260413 Latest Revision: 20260813
Update Code: 20260813
PubMed Central ID: PMC13076850
DOI: 10.17269/s41997-025-01087-5
PMID: 40830685
Βάση Δεδομένων: MEDLINE
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  Data: Cultural and contextual relevance of the Indigenous data in the Canadian longitudinal study on aging.
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  Data: <searchLink fieldCode="AU" term="%22Spiro+GM%22">Spiro GM</searchLink>; Institute for Health Policy, Management and Evaluation, University of Toronto, 155 College St 4 Floor, Toronto, ON, Canada. grace.spiro@utoronto.ca.<br /><searchLink fieldCode="AU" term="%22O'Connell+ME%22">O'Connell ME</searchLink>; Department of Psychology & Health Studies, University of Saskatchewan, 9 Campus Dr, Saskatoon, SK, Canada.<br /><searchLink fieldCode="AU" term="%22Ryan+C%22">Ryan C</searchLink>; Native Women's Association of Canada, 85 Albert St, Ottawa, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Warren+L%22">Warren L</searchLink>; Women's College Research Institute, Women's College Hospital, Toronto, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Walker+JD%22">Walker JD</searchLink>; Department of Health Research Methods, Evidence, and Impact, McMaster University, MDCL 3510. 1280 Main Street West, Hamilton, ON, Canada.
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  Data: <searchLink fieldCode="JN" term="%220372714%22">Canadian journal of public health = Revue canadienne de sante publique</searchLink> [Can J Public Health] 2026 Apr; Vol. 117 (2), pp. 341-349. <i>Date of Electronic Publication: </i>2025 Aug 19.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+Nature%22">Springer Nature </searchLink><i>Country of Publication: </i>Switzerland <i>NLM ID: </i>0372714 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1920-7476 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2200084263%22">00084263 </searchLink><i>NLM ISO Abbreviation: </i>Can J Public Health <i>Subsets: </i>MEDLINE
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  Data: <searchLink fieldCode="MM" term="%22Aging%22">Aging*</searchLink>/<searchLink fieldCode="MM" term="%22Aging+ethnology%22">ethnology</searchLink> <br /><searchLink fieldCode="MM" term="%22Indians%2C+North+American%22">Indians, North American*</searchLink>/<searchLink fieldCode="MM" term="%22Indians%2C+North+American+statistics+%26+numerical+data%22">statistics & numerical data</searchLink> <br /><searchLink fieldCode="MM" term="%22Indians%2C+North+American%22">Indians, North American*</searchLink>/<searchLink fieldCode="MM" term="%22Indians%2C+North+American+psychology%22">psychology</searchLink> <br /><searchLink fieldCode="MM" term="%22Inuit%22">Inuit*</searchLink>/<searchLink fieldCode="MM" term="%22Inuit+statistics+%26+numerical+data%22">statistics & numerical data</searchLink> <br /><searchLink fieldCode="MM" term="%22Cultural+Characteristics%22">Cultural Characteristics*</searchLink><br /><searchLink fieldCode="MH" term="%22Humans%22">Humans</searchLink> ; <searchLink fieldCode="MH" term="%22Canada%22">Canada</searchLink> ; <searchLink fieldCode="MH" term="%22Longitudinal+Studies%22">Longitudinal Studies</searchLink> ; <searchLink fieldCode="MH" term="%22Aged%22">Aged</searchLink> ; <searchLink fieldCode="MH" term="%22Female%22">Female</searchLink> ; <searchLink fieldCode="MH" term="%22Male%22">Male</searchLink> ; <searchLink fieldCode="MH" term="%22Aged%2C+80+and+over%22">Aged, 80 and over</searchLink> ; <searchLink fieldCode="MH" term="%22Middle+Aged%22">Middle Aged</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: Objectives: The CLSA is a national data platform for aging research that used epidemiology-based sampling methods and explicitly excluded people living on First Nations Reserves and other provincial First Nations settlements as possible CLSA participants. As such, the CLSA research approach did not use Indigenous community engagement. Nevertheless, the CLSA sample includes a sizeable subsample of participants who self-identified as First Nations, Métis, or Inuit. This project seeks to describe the self-identified Indigenous subsample of the CLSA from the baseline data collection and interpret that description with the aid of an Elder Advisory Circle.<br />Methods: We conducted a descriptive analysis of the self-identified Indigenous subsample of the CLSA from the baseline data collection. The analysis was presented to an Elder Advisory Circle for consultation.<br />Results: The lack of community-engaged approaches to Indigenous research and sampling approaches appears to have resulted in a sociodemographic profile of older Indigenous Peoples that does not match the lived experience of the Elder Advisory Circle and contrasts with other data available on Indigenous Peoples in Canada. We feel the existing CLSA data does not reflect the sociodemographic profile of older Indigenous Peoples.<br />Conclusion: We use this community consultation process to provide recommendations for the appropriate use of the Indigenous-identified data in the CLSA, and we conclude by recommending great caution when using the data from the Indigenous subsample in the CLSA data.<br /> (© 2025. The Author(s).)
– Name: Abstract
  Label: Competing Interests
  Group: Ab
  Data: Declarations. Ethics approval: Ethics approval for this study was attained through Laurentian University Research Ethics Board (Laurentian University, REB #6017270). Conflict of interest: The authors declare no competing interests. Disclaimer: The opinions expressed in this manuscript are the author’s own and do not reflect the views of the Canadian Longitudinal Study on Aging.
– Name: Ref
  Label: References
  Group: RefInfo
  Data: Int J Epidemiol. 2019 Dec 1;48(6):1752-1753j. (PMID: <searchLink fieldCode="PM" term="%2231633757%22">31633757)</searchLink><br />Can J Public Health. 2020 Dec;111(6):826-830. (PMID: <searchLink fieldCode="PM" term="%2233289057%22">33289057)</searchLink><br />J Gerontol B Psychol Sci Soc Sci. 2017 Mar 01;72(2):248-258. (PMID: <searchLink fieldCode="PM" term="%2227729385%22">27729385)</searchLink><br />Can J Aging. 2009 Sep;28(3):221-9. (PMID: <searchLink fieldCode="PM" term="%2219860977%22">19860977)</searchLink><br />Front Genet. 2022 Mar 21;13:823309. (PMID: <searchLink fieldCode="PM" term="%2235386282%22">35386282)</searchLink><br />Stat J IAOS. 2015;31(1):67-87. (PMID: <searchLink fieldCode="PM" term="%2226793283%22">26793283)</searchLink><br />J Cross Cult Gerontol. 2001;16(2):127-55. (PMID: <searchLink fieldCode="PM" term="%2214617986%22">14617986)</searchLink><br />Int J Popul Data Sci. 2021 Jun 22;6(1):1417. (PMID: <searchLink fieldCode="PM" term="%2234212119%22">34212119)</searchLink><br />J Health Serv Res Policy. 2024 Jul;29(3):210-221. (PMID: <searchLink fieldCode="PM" term="%2238099443%22">38099443)</searchLink><br />Eur J Ageing. 2022 Jan 12;19(3):775-787. (PMID: <searchLink fieldCode="PM" term="%2235035341%22">35035341)</searchLink><br />CJC Open. 2019 Oct 05;1(6):282-288. (PMID: <searchLink fieldCode="PM" term="%2232159122%22">32159122)</searchLink><br />Lancet. 2017 Nov 4;390(10107):2022-2023. (PMID: <searchLink fieldCode="PM" term="%2229115232%22">29115232)</searchLink>
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  Label: Contributed Indexing
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  Data: <i>Keywords: </i>CLSA; Data sovereignty; Indigenous-identified data<br /><i>Local Abstract: </i>[Publisher, French] RéSUMé: OBJECTIFS: L’Étude longitudinale canadienne sur le vieillissement (ÉLCV) est une plateforme nationale de données de recherche sur le vieillissement qui utilise des techniques d’échantillonnage fondées sur l’épidémiologie et qui exclut explicitement comme participants possibles les personnes vivant dans les réserves des Premières Nations et dans d’autres peuplements provinciaux de Premières Nations. De ce fait, l’approche de recherche de l’ÉLCV ne fait pas appel à la participation des communautés autochtones. Néanmoins, l’échantillon de l’ÉLCV inclut un sous-ensemble appréciable de participants qui s’identifient comme étant membres des Premières Nations, Métis ou Inuits. Notre projet visait à décrire ce sous-ensemble basé sur la collecte des données de référence et à interpréter cette description avec l’aide d’un cercle consultatif d’aînés. MéTHODES: Nous avons effectué une analyse descriptive du sous-ensemble de personnes s’identifiant comme étant autochtones dans l’ÉLCV basé sur la collecte des données de référence. Nous avons ensuite présenté notre analyse à un cercle consultatif d’aînés. RéSULTATS: L’absence d’approches de recherche axées sur les communautés autochtones et d’approches d’échantillonnage semble avoir donné un profil sociodémographique des personnes âgées autochtones qui ne correspond pas au vécu du cercle consultatif d’aînés et qui tranche avec les autres données disponibles sur les personnes autochtones au Canada. Nous jugeons que les données existantes de l’ÉLCV ne reflètent pas le profil sociodémographique des personnes âgées autochtones. CONCLUSION: Nous avons utilisé ce processus de consultation des communautés pour formuler des recommandations sur l’usage approprié des données sur l’identité autochtone dans l’ÉLCV; en conclusion, nous recommandons d’utiliser avec une extrême prudence les données du sous-ensemble autochtone des données de l’ÉLCV.
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