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Prevalence, incidence, and factors associated with pain-related disabilities, and experiences of limitations due to pain among First Nations, Inuit, and Métis peoples in Canada: A scoping review.

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Title: Prevalence, incidence, and factors associated with pain-related disabilities, and experiences of limitations due to pain among First Nations, Inuit, and Métis peoples in Canada: A scoping review.
Authors: DeSouza A; Faculty of Health Sciences, Ontario Tech University, Oshawa, ON, Canada. astrid.desouza@ontariotechu.net.; Institute for Disability and Rehabilitation Research, Ontario Tech University, Oshawa, ON, Canada. astrid.desouza@ontariotechu.net., Taylor D; Sacred Water Circle, Peterborough, ON, Canada.; Curve Lake First Nation, Peterborough, ON, Canada., Ward JL; Natoaganeg Mi'kmaq Nation, Miramichi, NB, Canada.; University of Manitoba, Winnipeg, MB, Canada., Vizza J; Faculty of Health Sciences, Ontario Tech University, Oshawa, ON, Canada., Yu H; Faculty of Health Sciences, Ontario Tech University, Oshawa, ON, Canada.; Institute for Disability and Rehabilitation Research, Ontario Tech University, Oshawa, ON, Canada.; Department of Research and Innovation, Canadian Memorial Chiropractic College, Toronto, ON, Canada., Murnaghan K; Library and Information Services, Canadian Memorial Chiropractic College, Toronto, ON, Canada., Cancelliere C; Faculty of Health Sciences, Ontario Tech University, Oshawa, ON, Canada.; Institute for Disability and Rehabilitation Research, Ontario Tech University, Oshawa, ON, Canada., Hogg-Johnson S; Institute for Disability and Rehabilitation Research, Ontario Tech University, Oshawa, ON, Canada.; Department of Research and Innovation, Canadian Memorial Chiropractic College, Toronto, ON, Canada.; Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada., Sheppard AJ; Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.; Indigenous Cancer Care Unit, Ontario Health, Toronto, ON, Canada., Côté P; Faculty of Health Sciences, Ontario Tech University, Oshawa, ON, Canada.; Institute for Disability and Rehabilitation Research, Ontario Tech University, Oshawa, ON, Canada.; Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
Source: Canadian journal of public health = Revue canadienne de sante publique [Can J Public Health] 2026 Feb; Vol. 117 (1), pp. 74-85. Date of Electronic Publication: 2025 Jun 16.
Publication Type: Journal Article; Scoping Review; Research Support, Non-U.S. Gov't
Language: English
Journal Info: Publisher: Springer Nature Country of Publication: Switzerland NLM ID: 0372714 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1920-7476 (Electronic) Linking ISSN: 00084263 NLM ISO Abbreviation: Can J Public Health Subsets: MEDLINE
Imprint Name(s): Publication: Switzerland : Springer Nature
Original Publication: Ottawa : Canadian Public Health Association
MeSH Terms: Inuit*/statistics & numerical data , Persons with Disabilities*/statistics & numerical data , Indians, North American*/statistics & numerical data , Pain*/epidemiology , Pain*/ethnology, Canada/epidemiology ; Humans ; Prevalence ; Incidence
Abstract: Objectives: To describe the prevalence, incidence, factors associated with pain-related disabilities, and experiences of limitations due to pain among First Nations, Inuit, and Métis peoples in Canada.
Methods: We conducted a scoping review of the literature. The search strategy, developed with a health sciences librarian, included Indigenous-specific and health peer-reviewed databases, and grey literature for studies from inception to May 23, 2023. We included epidemiological, qualitative, and mixed-methods studies assessing pain-related disability outcomes among First Nations, Inuit, and Métis peoples in Canada.
Synthesis: We screened 5902 citations from the peer-reviewed databases, of which 86 were screened as full-text items, and 49 were screened separately from grey literature sources. Two relevant items were retrieved. In 2017, an epidemiological study reported point prevalence estimates of pain-related disability lasting 6 months or more as follows: 11.4% among Inuit, 20.7% among Métis, and 22.2% among off-reserve First Nations people, with higher prevalence in women than in men. In 2002, a qualitative study highlighted emergent themes related to "difficulty coping with pain" and "suffering" among Cree adults with disabilities from the Mushkegowuk Territory. No studies reported on the incidence or factors associated with pain-related disability.
Conclusion: Our scoping review found two studies on pain-related disabilities among Indigenous peoples in Canada. Continued collaboration with Indigenous partners is required to contextualize these findings and determine appropriate next steps.
(© 2025. The Author(s).)
Competing Interests: Declarations. Conflict of interest: The authors declare no competing interests. Ethics approval: Not applicable. Consent to participate: Not applicable. Consent for publication: Not applicable.
References: J Racial Ethn Health Disparities. 2020 Apr;7(2):251-261. (PMID: 31664676)
J Pain. 2011 May;12(5):511-22. (PMID: 21330217)
Ann Intern Med. 2018 Oct 2;169(7):467-473. (PMID: 30178033)
Int J Qual Health Care. 2018 Apr 01;30(3):178-185. (PMID: 29346613)
J Pain Symptom Manage. 2005 Nov;30(5):454-64. (PMID: 16310619)
J Clin Rheumatol. 2020 Aug;26(5):169-175. (PMID: 30676383)
Mult Scler Relat Disord. 2023 Apr;72:104612. (PMID: 36917888)
Int J Environ Res Public Health. 2023 May 25;20(11):. (PMID: 37297560)
BMC Health Serv Res. 2016 Jul 26;16:305. (PMID: 27461419)
J Clin Epidemiol. 2016 Jul;75:40-6. (PMID: 27005575)
BMC Med Res Methodol. 2018 Nov 19;18(1):143. (PMID: 30453902)
Arthritis Care Res (Hoboken). 2017 Apr;69(4):467-474. (PMID: 27333120)
CMAJ. 2018 Dec 10;190(49):E1434-E1440. (PMID: 30530610)
Implement Sci. 2010 Sep 20;5:69. (PMID: 20854677)
Lancet. 2009 Jul 4;374(9683):76-85. (PMID: 19577696)
Health Rep. 1996 Summer;8(1):25-32 (Eng); 25-33 (Fre). (PMID: 8844178)
Semin Arthritis Rheum. 2017 Apr;46(5):675-686. (PMID: 27914688)
Public Health Rev. 2017 Mar 02;38:8. (PMID: 29450080)
Can J Anaesth. 2023 Jun;70(6):1047-1063. (PMID: 37341897)
BMJ Open. 2022 Jun 16;12(6):e059323. (PMID: 35710234)
Grant Information: Doctoral Award Institute of Indigenous Peoples' Health
Contributed Indexing: Keywords: Canada; Disability; Epidemiology; Indigenous health; Pain
Local Abstract: [Publisher, French] RéSUMé: OBJECTIFS: Décrire la prévalence et l’incidence de l’invalidité attribuable à la douleur, les facteurs associés et les expériences de limitations dues à la douleur chez les membres des Premières Nations, les Inuits et les Métis au Canada. MéTHODE: Nous avons mené une étude de champ de la littérature. Notre stratégie de recherche, élaborée avec une bibliothécaire en sciences de la santé, incluait des bases de données examinées par les pairs portant sur les questions autochtones et sur la santé, ainsi que la littérature grise, pour les études menées jusqu’au 23 mai 2023. Nous avons inclus les études épidémiologiques, qualitatives et à méthodes mixtes qui évaluaient les résultats cliniques de l’invalidité attribuable à la douleur chez les membres des Premières Nations, les Inuits et les Métis du Canada. SYNTHèSE: Nous avons sélectionné 5902 citations provenant des bases de données examinées par les pairs, dont 86 en texte intégral; nous en avons sélectionné 49 autres provenant de la littérature grise. Deux articles pertinents ont été récupérés. Une étude épidémiologique de 2017 présentait des estimations de la prévalence ponctuelle de l’invalidité attribuable à la douleur durant depuis six mois ou plus; cette prévalence était de 11,4% chez les Inuits, de 20,7% chez les Métis et de 22,2% chez les membres des Premières Nations hors des réserves; elle était plus élevée chez les femmes que chez les hommes. Une étude qualitative de 2002 dégageait des thèmes émergents liés à la «difficulté de gérer la douleur» et à la «souffrance» chez les adultes cris handicapés sur le territoire Mushkegowuk. Aucune étude ne portait sur l’incidence de l’invalidité attribuable à la douleur ni sur les facteurs associés. CONCLUSION: Notre étude de champ a relevé deux études sur l’invalidité attribuable à la douleur chez les peuples autochtones au Canada. Une collaboration soutenue avec des partenaires autochtones sera requise pour en contextualiser les constatations et déterminer les prochaines mesures qu’il convient de prendre.
Entry Date(s): Date Created: 20250616 Date Completed: 20260316 Latest Revision: 20261006
Update Code: 20261006
PubMed Central ID: PMC12992870
DOI: 10.17269/s41997-025-01047-z
PMID: 40522616
Database: MEDLINE
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  Data: Objectives: To describe the prevalence, incidence, factors associated with pain-related disabilities, and experiences of limitations due to pain among First Nations, Inuit, and Métis peoples in Canada.<br />Methods: We conducted a scoping review of the literature. The search strategy, developed with a health sciences librarian, included Indigenous-specific and health peer-reviewed databases, and grey literature for studies from inception to May 23, 2023. We included epidemiological, qualitative, and mixed-methods studies assessing pain-related disability outcomes among First Nations, Inuit, and Métis peoples in Canada.<br />Synthesis: We screened 5902 citations from the peer-reviewed databases, of which 86 were screened as full-text items, and 49 were screened separately from grey literature sources. Two relevant items were retrieved. In 2017, an epidemiological study reported point prevalence estimates of pain-related disability lasting 6 months or more as follows: 11.4% among Inuit, 20.7% among Métis, and 22.2% among off-reserve First Nations people, with higher prevalence in women than in men. In 2002, a qualitative study highlighted emergent themes related to "difficulty coping with pain" and "suffering" among Cree adults with disabilities from the Mushkegowuk Territory. No studies reported on the incidence or factors associated with pain-related disability.<br />Conclusion: Our scoping review found two studies on pain-related disabilities among Indigenous peoples in Canada. Continued collaboration with Indigenous partners is required to contextualize these findings and determine appropriate next steps.<br /> (© 2025. The Author(s).)
– Name: Abstract
  Label: Competing Interests
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  Data: Declarations. Conflict of interest: The authors declare no competing interests. Ethics approval: Not applicable. Consent to participate: Not applicable. Consent for publication: Not applicable.
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  Data: J Racial Ethn Health Disparities. 2020 Apr;7(2):251-261. (PMID: <searchLink fieldCode="PM" term="%2231664676%22">31664676)</searchLink><br />J Pain. 2011 May;12(5):511-22. (PMID: <searchLink fieldCode="PM" term="%2221330217%22">21330217)</searchLink><br />Ann Intern Med. 2018 Oct 2;169(7):467-473. (PMID: <searchLink fieldCode="PM" term="%2230178033%22">30178033)</searchLink><br />Int J Qual Health Care. 2018 Apr 01;30(3):178-185. (PMID: <searchLink fieldCode="PM" term="%2229346613%22">29346613)</searchLink><br />J Pain Symptom Manage. 2005 Nov;30(5):454-64. (PMID: <searchLink fieldCode="PM" term="%2216310619%22">16310619)</searchLink><br />J Clin Rheumatol. 2020 Aug;26(5):169-175. (PMID: <searchLink fieldCode="PM" term="%2230676383%22">30676383)</searchLink><br />Mult Scler Relat Disord. 2023 Apr;72:104612. (PMID: <searchLink fieldCode="PM" term="%2236917888%22">36917888)</searchLink><br />Int J Environ Res Public Health. 2023 May 25;20(11):. (PMID: <searchLink fieldCode="PM" term="%2237297560%22">37297560)</searchLink><br />BMC Health Serv Res. 2016 Jul 26;16:305. (PMID: <searchLink fieldCode="PM" term="%2227461419%22">27461419)</searchLink><br />J Clin Epidemiol. 2016 Jul;75:40-6. (PMID: <searchLink fieldCode="PM" term="%2227005575%22">27005575)</searchLink><br />BMC Med Res Methodol. 2018 Nov 19;18(1):143. (PMID: <searchLink fieldCode="PM" term="%2230453902%22">30453902)</searchLink><br />Arthritis Care Res (Hoboken). 2017 Apr;69(4):467-474. (PMID: <searchLink fieldCode="PM" term="%2227333120%22">27333120)</searchLink><br />CMAJ. 2018 Dec 10;190(49):E1434-E1440. (PMID: <searchLink fieldCode="PM" term="%2230530610%22">30530610)</searchLink><br />Implement Sci. 2010 Sep 20;5:69. (PMID: <searchLink fieldCode="PM" term="%2220854677%22">20854677)</searchLink><br />Lancet. 2009 Jul 4;374(9683):76-85. (PMID: <searchLink fieldCode="PM" term="%2219577696%22">19577696)</searchLink><br />Health Rep. 1996 Summer;8(1):25-32 (Eng); 25-33 (Fre). (PMID: <searchLink fieldCode="PM" term="%228844178%22">8844178)</searchLink><br />Semin Arthritis Rheum. 2017 Apr;46(5):675-686. (PMID: <searchLink fieldCode="PM" term="%2227914688%22">27914688)</searchLink><br />Public Health Rev. 2017 Mar 02;38:8. (PMID: <searchLink fieldCode="PM" term="%2229450080%22">29450080)</searchLink><br />Can J Anaesth. 2023 Jun;70(6):1047-1063. (PMID: <searchLink fieldCode="PM" term="%2237341897%22">37341897)</searchLink><br />BMJ Open. 2022 Jun 16;12(6):e059323. (PMID: <searchLink fieldCode="PM" term="%2235710234%22">35710234)</searchLink>
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  Data: <i>Keywords: </i>Canada; Disability; Epidemiology; Indigenous health; Pain<br /><i>Local Abstract: </i>[Publisher, French] RéSUMé: OBJECTIFS: Décrire la prévalence et l’incidence de l’invalidité attribuable à la douleur, les facteurs associés et les expériences de limitations dues à la douleur chez les membres des Premières Nations, les Inuits et les Métis au Canada. MéTHODE: Nous avons mené une étude de champ de la littérature. Notre stratégie de recherche, élaborée avec une bibliothécaire en sciences de la santé, incluait des bases de données examinées par les pairs portant sur les questions autochtones et sur la santé, ainsi que la littérature grise, pour les études menées jusqu’au 23 mai 2023. Nous avons inclus les études épidémiologiques, qualitatives et à méthodes mixtes qui évaluaient les résultats cliniques de l’invalidité attribuable à la douleur chez les membres des Premières Nations, les Inuits et les Métis du Canada. SYNTHèSE: Nous avons sélectionné 5902 citations provenant des bases de données examinées par les pairs, dont 86 en texte intégral; nous en avons sélectionné 49 autres provenant de la littérature grise. Deux articles pertinents ont été récupérés. Une étude épidémiologique de 2017 présentait des estimations de la prévalence ponctuelle de l’invalidité attribuable à la douleur durant depuis six mois ou plus; cette prévalence était de 11,4% chez les Inuits, de 20,7% chez les Métis et de 22,2% chez les membres des Premières Nations hors des réserves; elle était plus élevée chez les femmes que chez les hommes. Une étude qualitative de 2002 dégageait des thèmes émergents liés à la «difficulté de gérer la douleur» et à la «souffrance» chez les adultes cris handicapés sur le territoire Mushkegowuk. Aucune étude ne portait sur l’incidence de l’invalidité attribuable à la douleur ni sur les facteurs associés. CONCLUSION: Notre étude de champ a relevé deux études sur l’invalidité attribuable à la douleur chez les peuples autochtones au Canada. Une collaboration soutenue avec des partenaires autochtones sera requise pour en contextualiser les constatations et déterminer les prochaines mesures qu’il convient de prendre.
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