Academic Journal
Lessons Learned From 2 Research Studies Enrolling Underrepresented Patients With Ventricular Assist Devices and Their Family Caregivers.
| Title: | Lessons Learned From 2 Research Studies Enrolling Underrepresented Patients With Ventricular Assist Devices and Their Family Caregivers. |
|---|---|
| Authors: | Bechthold AC; School of Nursing, University of Alabama at Birmingham, Birmingham, AL. Electronic address: abechth@uab.edu., Abshiresaylor M; School of Nursing, Johns Hopkins University, Baltimore, MD., Wells RD; School of Nursing, University of Alabama at Birmingham, Birmingham, AL. |
| Source: | Journal of cardiac failure [J Card Fail] 2025 Apr; Vol. 31 (4), pp. 748-752. Date of Electronic Publication: 2025 Mar 05. |
| Publication Type: | Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't |
| Language: | English |
| Journal Info: | Publisher: Churchill Livingstone Country of Publication: United States NLM ID: 9442138 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-8414 (Electronic) Linking ISSN: 10719164 NLM ISO Abbreviation: J Card Fail Subsets: MEDLINE |
| Imprint Name(s): | Publication: <2002->: Philadelphia, PA : Churchill Livingstone Original Publication: Naperville, IL : Churchill Livingstone, c1994- |
| MeSH Terms: | Caregivers*/psychology , Heart Failure*/therapy , Heart Failure*/psychology , Heart-Assist Devices* , Patient Selection*, Humans ; Female ; Male ; Adult ; Middle Aged |
| Abstract: | Given the continued challenges of and barriers to recruiting and retaining underrepresented groups in cardiovascular studies, this study aimed to describe successful recruitment strategies used by 2 related ventricular assist device (VAD) studies. The 2 exemplar studies focused on understanding how adults with a VAD and their family caregivers discuss, reflect upon and act on their personal values. To recruit a more representative and diverse sample reflective of the substantial Black population receiving care at the local academic hospital outpatient clinic, we developed multipronged recruitment strategies for a convergent mixed-methods study (Study 1) and a sequential explanatory mixed-methods study (Study 2). Two underlying principles guided recruitment strategies: (1) clinician-scientist collaboration, and (2) personalized participant interactions. This article reflects on lessons learned by an early career investigator and her mentors from 2 studies, which will support ongoing inclusive recruitment in future projects. (Copyright © 2025 Elsevier Inc. All rights reserved.) |
| Competing Interests: | Disclosures The authors declare that there are no conflicts of interest. |
| Grant Information: | UL1 TR001866 United States TR NCATS NIH HHS |
| Contributed Indexing: | Keywords: Black or African American; family caregivers; heart failure; heart-assist devices; mixed methods; palliative care; research-subject recruitment |
| Entry Date(s): | Date Created: 20250307 Date Completed: 20250410 Latest Revision: 20260413 |
| Update Code: | 20260413 |
| DOI: | 10.1016/j.cardfail.2025.01.026 |
| PMID: | 40054837 |
| Database: | MEDLINE |
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