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Navigating Communication, Social Connectedness, and Mental Health Burden as Hispanic/Latiné Care Partners of Individuals With Parkinson's Disease.

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Τίτλος: Navigating Communication, Social Connectedness, and Mental Health Burden as Hispanic/Latiné Care Partners of Individuals With Parkinson's Disease.
Συγγραφείς: Moya-Galé, Gemma1 gm2446@tc.columbia.edu, Fernández, Isabel Figueroa2, González, Xena1, Manosalvas, Kiara2, Agin-Liebes, Julian3
Πηγή: American Journal of Speech-Language Pathology. Mar2026, Vol. 35 Issue 2, p621-637. 17p.
Θεματικοί όροι: *Support groups, *Mental health, *Focus groups, *Stereotypes, *Research funding, *Hispanic Americans, *Spouses, *Statistical sampling, *Parkinson's disease, *Psychoeducation, *Financial stress, *Thematic analysis, *Communication, *Interpersonal relations, *Data analysis software, *Caregiver attitudes, *Video recording, *COVID-19 pandemic, *Cultural pluralism, *Disease progression
Περίληψη: Purpose: Care partners of individuals with Parkinson's disease (PD) navigate unique challenges that may impact their overall quality of life. Although some of these experiences may reflect a universal component of the disease, driven by motor and nonmotor symptoms of PD, care partner perceptions may also reflect culture-dependent values. The purpose of this study was to examine how Hispanic/Latiné care partners of individuals with PD experienced communication, social connectedness, and mental health in their relationship with their loved one with PD with the ultimate goal of establishing initial guidelines for the development of culturally responsive support groups for this population. Method: Fifteen Hispanic/Latiné care partners of people with PD participated in six focus groups. Transcripts of the video-recorded groups were analyzed qualitatively using thematic analysis. Results: Four themes were generated from this data set. Overall, care partners perceived burden as a multifaceted construct involving emotional, financial, and societal strains. Care partners implemented strategies that enhanced communicative interactions with their loved ones and served as their own coping mechanism against the progressive nature of the disease. Cultural influences on PD management and the social and mental health impact of the COVID-19 pandemic also represented key themes in this study. Conclusions: Education is an empowering resource to not only navigate difficult emotions, such as uncertainty, but also debunk societal stereotyping and facilitate open communication within the relationship. The research highlighted the significance of culturally affirming services, as many participants shared experiences of medical and psychological services lacking cultural responsiveness. Guidelines for culturally responsive support groups for Hispanic/Latiné care partners should directly target psychoeducation on PD and on disease management as well as advocacy. Special consideration should be given to the needs of Hispanic/Latiné female care partners. [ABSTRACT FROM AUTHOR]
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  Data: Navigating Communication, Social Connectedness, and Mental Health Burden as Hispanic/Latiné Care Partners of Individuals With Parkinson's Disease.
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  Data: <searchLink fieldCode="AR" term="%22Moya-Galé%2C+Gemma%22">Moya-Galé, Gemma</searchLink><relatesTo>1</relatesTo><i> gm2446@tc.columbia.edu</i><br /><searchLink fieldCode="AR" term="%22Fernández%2C+Isabel+Figueroa%22">Fernández, Isabel Figueroa</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22González%2C+Xena%22">González, Xena</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Manosalvas%2C+Kiara%22">Manosalvas, Kiara</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Agin-Liebes%2C+Julian%22">Agin-Liebes, Julian</searchLink><relatesTo>3</relatesTo>
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  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Speech-Language+Pathology%22">American Journal of Speech-Language Pathology</searchLink>. Mar2026, Vol. 35 Issue 2, p621-637. 17p.
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– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose: Care partners of individuals with Parkinson's disease (PD) navigate unique challenges that may impact their overall quality of life. Although some of these experiences may reflect a universal component of the disease, driven by motor and nonmotor symptoms of PD, care partner perceptions may also reflect culture-dependent values. The purpose of this study was to examine how Hispanic/Latiné care partners of individuals with PD experienced communication, social connectedness, and mental health in their relationship with their loved one with PD with the ultimate goal of establishing initial guidelines for the development of culturally responsive support groups for this population. Method: Fifteen Hispanic/Latiné care partners of people with PD participated in six focus groups. Transcripts of the video-recorded groups were analyzed qualitatively using thematic analysis. Results: Four themes were generated from this data set. Overall, care partners perceived burden as a multifaceted construct involving emotional, financial, and societal strains. Care partners implemented strategies that enhanced communicative interactions with their loved ones and served as their own coping mechanism against the progressive nature of the disease. Cultural influences on PD management and the social and mental health impact of the COVID-19 pandemic also represented key themes in this study. Conclusions: Education is an empowering resource to not only navigate difficult emotions, such as uncertainty, but also debunk societal stereotyping and facilitate open communication within the relationship. The research highlighted the significance of culturally affirming services, as many participants shared experiences of medical and psychological services lacking cultural responsiveness. Guidelines for culturally responsive support groups for Hispanic/Latiné care partners should directly target psychoeducation on PD and on disease management as well as advocacy. Special consideration should be given to the needs of Hispanic/Latiné female care partners. [ABSTRACT FROM AUTHOR]
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asx&AN=192247758
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1044/2025_AJSLP-25-00053
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 17
        StartPage: 621
    Subjects:
      – SubjectFull: Support groups
        Type: general
      – SubjectFull: Mental health
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Stereotypes
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Hispanic Americans
        Type: general
      – SubjectFull: Spouses
        Type: general
      – SubjectFull: Statistical sampling
        Type: general
      – SubjectFull: Parkinson's disease
        Type: general
      – SubjectFull: Psychoeducation
        Type: general
      – SubjectFull: Financial stress
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Communication
        Type: general
      – SubjectFull: Interpersonal relations
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Caregiver attitudes
        Type: general
      – SubjectFull: Video recording
        Type: general
      – SubjectFull: COVID-19 pandemic
        Type: general
      – SubjectFull: Cultural pluralism
        Type: general
      – SubjectFull: Disease progression
        Type: general
    Titles:
      – TitleFull: Navigating Communication, Social Connectedness, and Mental Health Burden as Hispanic/Latiné Care Partners of Individuals With Parkinson's Disease.
        Type: main
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            NameFull: Moya-Galé, Gemma
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            NameFull: Fernández, Isabel Figueroa
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            – D: 01
              M: 03
              Text: Mar2026
              Type: published
              Y: 2026
          Identifiers:
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              Value: 35
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            – TitleFull: American Journal of Speech-Language Pathology
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