Academic Journal
View in EDS

Refining Methods of Experience-Based Co-Design for Application in Aphasia and Cognitive-Communication Disability.

Bibliographic Details
Title: Refining Methods of Experience-Based Co-Design for Application in Aphasia and Cognitive-Communication Disability.
Authors: Pierce, John E.1,2 j.pierce@latrobe.edu.au, Hernandez, Nelson J.1,2, Alahakoon, Damminda3, Hill, Annie1,2, Dana Wong1,4, Ryan, Brooke1,5, Copland, David1,6, Power, Emma1,7, Kneebone, Ian1,7, Togher, Leanne1,8,9, Usherwood, Tim9, Lindley, Richard I.1,9, Shiggins, Ciara1,6, Cadilhac, Dominique1,10, Hill, Kelvin1,11, Churilov, Leonid1,12, Worrall, Linda1,6, Rietdijk, Rachael8, Sheldrick, Tracy13, Lanyon, Lucette1,2
Source: American Journal of Speech-Language Pathology. Dec2025, Vol. 34 Issue 6, p3400-3417. 18p.
Subject Terms: *Cognition disorders treatment, *Treatment of communicative disorders, *Interprofessional relations, *Self-management (Psychology), *Medical technology, *Qualitative research, *Focus groups, *Research funding, *Medical care, *Ethnology research, *Interviewing, *Aphasia, *Experimental design, *Experience, *Communicative disorders research, *Action research, *Research methodology, *Videoconferencing, *Psychometrics, *Stakeholder analysis, *Phenomenology, *Data analysis software
Geographic Terms: Victoria, Queensland, New South Wales
Abstract: Purpose: Co-design of research and services alongside end users is increasingly required by funding bodies and governments. To enable a meaningful inclusion of people with communication disability, planning and modification are required, as standard co-design procedures involve extensive spoken and written language. Experience-based co-design (EBCD) is one co-design approach that is gaining popularity; however, there are few detailed reports to date on adapting EBCD for communication disability. This article outlines our modifications of EBCD to co-design a technology-enabled self-management platform (Communication Connect) for people living with poststroke aphasia and cognitive-communication disability from traumatic brain injury. Method: Participants included individuals with communication disabilities (n = 8), care partners (n = 3), and health professionals (n = 20) across three Australian states. Data collection involved video-recorded interviews, focus groups, and structured prioritization workshops. This study describes the first four stages of EBCD (project setup, two experience-gathering stages, and identifying priorities). Results: This article presents a detailed account of the practical decisions and modifications made throughout the EBCD process. Key adaptations are outlined, including the use of text-based video editing to efficiently create touchpoint films, nonlinear presentation of challenges to facilitate engagement, and visual aids to support prioritization and ranking. These modifications supported the meaningful participation of co-designers, including people with communication disability. Conclusion: This method article contributes to the growing knowledge on adapting EBCD for communication disability, which may be of use to future EBCD projects and for improving the meaningful inclusion of people with communication disability in co-design research. [ABSTRACT FROM AUTHOR]
Database: Academic Search Index
FullText Text:
  Availability: 0
Header DbId: asx
DbLabel: Academic Search Index
An: 189224615
RelevancyScore: 1473
AccessLevel: 6
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 1473.09606933594
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Refining Methods of Experience-Based Co-Design for Application in Aphasia and Cognitive-Communication Disability.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Pierce%2C+John+E%2E%22">Pierce, John E.</searchLink><relatesTo>1,2</relatesTo><i> j.pierce@latrobe.edu.au</i><br /><searchLink fieldCode="AR" term="%22Hernandez%2C+Nelson+J%2E%22">Hernandez, Nelson J.</searchLink><relatesTo>1,2</relatesTo><br /><searchLink fieldCode="AR" term="%22Alahakoon%2C+Damminda%22">Alahakoon, Damminda</searchLink><relatesTo>3</relatesTo><br /><searchLink fieldCode="AR" term="%22Hill%2C+Annie%22">Hill, Annie</searchLink><relatesTo>1,2</relatesTo><br /><searchLink fieldCode="AR" term="%22Dana+Wong%22">Dana Wong</searchLink><relatesTo>1,4</relatesTo><br /><searchLink fieldCode="AR" term="%22Ryan%2C+Brooke%22">Ryan, Brooke</searchLink><relatesTo>1,5</relatesTo><br /><searchLink fieldCode="AR" term="%22Copland%2C+David%22">Copland, David</searchLink><relatesTo>1,6</relatesTo><br /><searchLink fieldCode="AR" term="%22Power%2C+Emma%22">Power, Emma</searchLink><relatesTo>1,7</relatesTo><br /><searchLink fieldCode="AR" term="%22Kneebone%2C+Ian%22">Kneebone, Ian</searchLink><relatesTo>1,7</relatesTo><br /><searchLink fieldCode="AR" term="%22Togher%2C+Leanne%22">Togher, Leanne</searchLink><relatesTo>1,8,9</relatesTo><br /><searchLink fieldCode="AR" term="%22Usherwood%2C+Tim%22">Usherwood, Tim</searchLink><relatesTo>9</relatesTo><br /><searchLink fieldCode="AR" term="%22Lindley%2C+Richard+I%2E%22">Lindley, Richard I.</searchLink><relatesTo>1,9</relatesTo><br /><searchLink fieldCode="AR" term="%22Shiggins%2C+Ciara%22">Shiggins, Ciara</searchLink><relatesTo>1,6</relatesTo><br /><searchLink fieldCode="AR" term="%22Cadilhac%2C+Dominique%22">Cadilhac, Dominique</searchLink><relatesTo>1,10</relatesTo><br /><searchLink fieldCode="AR" term="%22Hill%2C+Kelvin%22">Hill, Kelvin</searchLink><relatesTo>1,11</relatesTo><br /><searchLink fieldCode="AR" term="%22Churilov%2C+Leonid%22">Churilov, Leonid</searchLink><relatesTo>1,12</relatesTo><br /><searchLink fieldCode="AR" term="%22Worrall%2C+Linda%22">Worrall, Linda</searchLink><relatesTo>1,6</relatesTo><br /><searchLink fieldCode="AR" term="%22Rietdijk%2C+Rachael%22">Rietdijk, Rachael</searchLink><relatesTo>8</relatesTo><br /><searchLink fieldCode="AR" term="%22Sheldrick%2C+Tracy%22">Sheldrick, Tracy</searchLink><relatesTo>13</relatesTo><br /><searchLink fieldCode="AR" term="%22Lanyon%2C+Lucette%22">Lanyon, Lucette</searchLink><relatesTo>1,2</relatesTo>
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Speech-Language+Pathology%22">American Journal of Speech-Language Pathology</searchLink>. Dec2025, Vol. 34 Issue 6, p3400-3417. 18p.
– Name: Subject
  Label: Subject Terms
  Group: Su
  Data: *<searchLink fieldCode="DE" term="%22Cognition+disorders+treatment%22">Cognition disorders treatment</searchLink><br />*<searchLink fieldCode="DE" term="%22Treatment+of+communicative+disorders%22">Treatment of communicative disorders</searchLink><br />*<searchLink fieldCode="DE" term="%22Interprofessional+relations%22">Interprofessional relations</searchLink><br />*<searchLink fieldCode="DE" term="%22Self-management+%28Psychology%29%22">Self-management (Psychology)</searchLink><br />*<searchLink fieldCode="DE" term="%22Medical+technology%22">Medical technology</searchLink><br />*<searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br />*<searchLink fieldCode="DE" term="%22Focus+groups%22">Focus groups</searchLink><br />*<searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br />*<searchLink fieldCode="DE" term="%22Medical+care%22">Medical care</searchLink><br />*<searchLink fieldCode="DE" term="%22Ethnology+research%22">Ethnology research</searchLink><br />*<searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br />*<searchLink fieldCode="DE" term="%22Aphasia%22">Aphasia</searchLink><br />*<searchLink fieldCode="DE" term="%22Experimental+design%22">Experimental design</searchLink><br />*<searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br />*<searchLink fieldCode="DE" term="%22Communicative+disorders+research%22">Communicative disorders research</searchLink><br />*<searchLink fieldCode="DE" term="%22Action+research%22">Action research</searchLink><br />*<searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br />*<searchLink fieldCode="DE" term="%22Videoconferencing%22">Videoconferencing</searchLink><br />*<searchLink fieldCode="DE" term="%22Psychometrics%22">Psychometrics</searchLink><br />*<searchLink fieldCode="DE" term="%22Stakeholder+analysis%22">Stakeholder analysis</searchLink><br />*<searchLink fieldCode="DE" term="%22Phenomenology%22">Phenomenology</searchLink><br />*<searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink>
– Name: SubjectGeographic
  Label: Geographic Terms
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Victoria%22">Victoria</searchLink><br /><searchLink fieldCode="DE" term="%22Queensland%22">Queensland</searchLink><br /><searchLink fieldCode="DE" term="%22New+South+Wales%22">New South Wales</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose: Co-design of research and services alongside end users is increasingly required by funding bodies and governments. To enable a meaningful inclusion of people with communication disability, planning and modification are required, as standard co-design procedures involve extensive spoken and written language. Experience-based co-design (EBCD) is one co-design approach that is gaining popularity; however, there are few detailed reports to date on adapting EBCD for communication disability. This article outlines our modifications of EBCD to co-design a technology-enabled self-management platform (Communication Connect) for people living with poststroke aphasia and cognitive-communication disability from traumatic brain injury. Method: Participants included individuals with communication disabilities (n = 8), care partners (n = 3), and health professionals (n = 20) across three Australian states. Data collection involved video-recorded interviews, focus groups, and structured prioritization workshops. This study describes the first four stages of EBCD (project setup, two experience-gathering stages, and identifying priorities). Results: This article presents a detailed account of the practical decisions and modifications made throughout the EBCD process. Key adaptations are outlined, including the use of text-based video editing to efficiently create touchpoint films, nonlinear presentation of challenges to facilitate engagement, and visual aids to support prioritization and ranking. These modifications supported the meaningful participation of co-designers, including people with communication disability. Conclusion: This method article contributes to the growing knowledge on adapting EBCD for communication disability, which may be of use to future EBCD projects and for improving the meaningful inclusion of people with communication disability in co-design research. [ABSTRACT FROM AUTHOR]
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asx&AN=189224615
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1044/2025_AJSLP-25-00112
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 18
        StartPage: 3400
    Subjects:
      – SubjectFull: Victoria
        Type: general
      – SubjectFull: Queensland
        Type: general
      – SubjectFull: New South Wales
        Type: general
      – SubjectFull: Cognition disorders treatment
        Type: general
      – SubjectFull: Treatment of communicative disorders
        Type: general
      – SubjectFull: Interprofessional relations
        Type: general
      – SubjectFull: Self-management (Psychology)
        Type: general
      – SubjectFull: Medical technology
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Medical care
        Type: general
      – SubjectFull: Ethnology research
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Aphasia
        Type: general
      – SubjectFull: Experimental design
        Type: general
      – SubjectFull: Experience
        Type: general
      – SubjectFull: Communicative disorders research
        Type: general
      – SubjectFull: Action research
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Videoconferencing
        Type: general
      – SubjectFull: Psychometrics
        Type: general
      – SubjectFull: Stakeholder analysis
        Type: general
      – SubjectFull: Phenomenology
        Type: general
      – SubjectFull: Data analysis software
        Type: general
    Titles:
      – TitleFull: Refining Methods of Experience-Based Co-Design for Application in Aphasia and Cognitive-Communication Disability.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Pierce, John E.
      – PersonEntity:
          Name:
            NameFull: Hernandez, Nelson J.
      – PersonEntity:
          Name:
            NameFull: Alahakoon, Damminda
      – PersonEntity:
          Name:
            NameFull: Hill, Annie
      – PersonEntity:
          Name:
            NameFull: Dana Wong
      – PersonEntity:
          Name:
            NameFull: Ryan, Brooke
      – PersonEntity:
          Name:
            NameFull: Copland, David
      – PersonEntity:
          Name:
            NameFull: Power, Emma
      – PersonEntity:
          Name:
            NameFull: Kneebone, Ian
      – PersonEntity:
          Name:
            NameFull: Togher, Leanne
      – PersonEntity:
          Name:
            NameFull: Usherwood, Tim
      – PersonEntity:
          Name:
            NameFull: Lindley, Richard I.
      – PersonEntity:
          Name:
            NameFull: Shiggins, Ciara
      – PersonEntity:
          Name:
            NameFull: Cadilhac, Dominique
      – PersonEntity:
          Name:
            NameFull: Hill, Kelvin
      – PersonEntity:
          Name:
            NameFull: Churilov, Leonid
      – PersonEntity:
          Name:
            NameFull: Worrall, Linda
      – PersonEntity:
          Name:
            NameFull: Rietdijk, Rachael
      – PersonEntity:
          Name:
            NameFull: Sheldrick, Tracy
      – PersonEntity:
          Name:
            NameFull: Lanyon, Lucette
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 12
              Text: Dec2025
              Type: published
              Y: 2025
          Identifiers:
            – Type: issn-print
              Value: 10580360
          Numbering:
            – Type: volume
              Value: 34
            – Type: issue
              Value: 6
          Titles:
            – TitleFull: American Journal of Speech-Language Pathology
              Type: main
ResultId 1