Improved Transition Management of Adolescents and Young Adults With Allergy and/or Asthma: An EAACI Task Force Report on a Follow-Up European Survey

Συγγραφείς: Atzert, Nina, Gore, Claudia, Knibb, Rebecca, Alviani, Cherry, Angier, Elizabeth, Blumchen, Katharina, Garriga Baraut, Teresa

Συνεισφορές: Institut Català de la Salut, Atzert N Department of Allergy and Clinical Immunology, Kinderspital Zurich, Zurich, Switzerland. Gore C Department of Paediatric Allergy, Imperial College Healthcare NHS Trust, London, UK. Section of Inflammation, Repair and Development, National Heart and Lung Institute, Imperial College London, London, UK. Knibb RC Institute of Health and Neurodevelopment, Aston University, Birmingham, UK. Alviani C Faculty of Medicine, University of Southampton, Southampton, UK. The David Hide Asthma and Allergy Research Centre, St Mary's Hospital, Isle of Wight, UK. Angier E Primary Care and Population Sciences, University of Southampton, Southampton, UK. Blumchen K Department of Pediatrics, Division of Pneumology, Allergology, Infectious Diseases and Gastroenterology, Goethe University, Frankfurt am Main, Germany. Garriga-Baraut T Servei de Pneumologia, Fibrosi Quística i Al·lèrgia Pediàtrica, Vall d'Hebron Hospital Universitari, Barcelona, Spain. Grup d’Investigació “Creixement i Desenvolupament”, Barcelona, Spain, Vall d'Hebron Barcelona Hospital Campus

Πηγή: Scientia

Θεματικοί όροι: Asma - Tractament, Al·lèrgia - Tractament, Enquestes, Joves adults, Assistència sanitària, ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Continuity of Patient Care::Transition to Adult Care, AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Data Collection::Surveys and Questionnaires, DISEASES::Immune System Diseases::Hypersensitivity, DISEASES::Respiratory Tract Diseases::Bronchial Diseases::Asthma, NAMED GROUPS::Persons::Age Groups::Adult::Young Adult, TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::continuidad de la atención al paciente::tránsito a la atención adulta, DIAGNÓSTICOS Y TERAPÉUTICOS::técnicas de investigación::métodos epidemiológicos::recopilación de datos::encuestas y cuestionarios, ENFERMEDADES::enfermedades del sistema inmune::hipersensibilidad, ENFERMEDADES::enfermedades respiratorias::enfermedades bronquiales::asma, DENOMINACIONES DE GRUPOS::personas::Grupos de Edad::adulto::adulto joven

Περιγραφή αρχείου: application/pdf

Relation: Allergy;80(6); https://doi.org/10.1111/all.16603; https://hdl.handle.net/11351/13827; 001509855100001

Διαθεσιμότητα: https://hdl.handle.net/11351/13827
https://doi.org/10.1111/all.16603

Recommendations for Transitioning Young People with Primary Immunodeficiency Disorders and Autoinflammatory Diseases to Adult Care

Συγγραφείς: Muskan Israni, Eliska Alderson, Nizar Mahlaoui, Laura Obici, Linda Rossi-Semerano, Helen Lachmann, Mojca Zajc Avramovič, Aurelien Guffroy, Virgil Dalm, Rachel Rimmer, Leire Solis, Carlota Villar, Andrew R. Gennery, Stephanie Skeffington, Julia Nordin, Klaus Warnatz, Anne-Sophie Korganow, Jordi Antón, Marco Cattalini, Stefan Berg, Pere Soler-Palacin, Mari Campbell, Siobhan O. Burns, the ESID Clinical Working Party, the ERN RITA Transition Working Group Consortium, Gardulf, Ann, Sediva, Anna, Soler-Palacín, Pere, Hauck, Fabian, Meyts, Isabelle, Haerynck, Filomeen, Pac, Malgorzata, Velcheva, Margarita, Jandus, Peter, Pergent, Martine, Carrabba, Maria, Neven, Bénédicte, null, null, Gonzalez-Granado, Luis Ignacio, Alataki-Papadopoulou, Efimia, Elfeky, Reem, Kelečić, Jadranka, van der Werff ten Bosch, Jutte, Amoura, Zahir, Friman, Vanda, Heilmann, Carsten, Conlan, Niall, Aalto, Kristiina, Sanchez-Manubens, Judith, Sabato, Vito, Seppänen, Mikko, Solanich, Xavier, Insalaco, Antonella, Zeuner, Rainald, Tommasini, Alberto, Naumova, Elissaveta, Blattmann, Claudia, Slatter, Mary, Litzman, Jiří, Philippet, Pierre, Candotti, Fabio, Ekwall, Olov, Kralickova, Pavlina, Seidel, Markus, Canessa, Clementina, Schrijvers, Rik, Prescott, Natasha, Holzer, Ursula, Carreras, Carmen, Kanariou, Maria, Jeseňák, Miloš, Pitsios, Constantinos, Devlin, Lisa, Arkwright, Peter, Wulffraat, Nico, Papadopoulou, Charalampia, Baselli, Lucia, Dellepiane, Rosa Maria, Savic, Sinisa, Brodszki, Nicholas, Alsina, Laia, Suarez, Felipe, Moschese, Viviana, Mogensen, Trine Hyrup, Ludviksson, Bjorn Runar, McDermott, Elizabeth, Fritsch-Stork, Ruth, Barzaghi, Federica, Capilna, Brindusa, Folkers, Marina, Keogan, Mary, Niehues, Tim, Ogunjimi, Benson, Koliou, Maria, Lefèvre, Guillaume, Jolles, Stephen, Méndez-Echevarría, Ana, Bernatowska, Ewa, Hague, Rosie, Goffard, Jean-Christophe, Gilliaux, Olivier, Faust, Saul, Luck, Patricia, Wouters, Carine, Elcombe, Suzanne, Holzinger, Dirk, Santamaria, Manuel, Hanitsch, Leif, Brogan, Paul, Herlin, Troels, von Bernuth, Horst, Fabio, Giovanna, Hentgen, Véronique, Marquart, Hanne, da Silva, Susana Lopes, Katzenstein, Terese, Masmas, Tania Nicole, Neth, Olaf, Dehoorne, Joke, Amin, Tania, Hayward, Georgia

Συνεισφορές: Institut Català de la Salut, [Israni M, Alderson E] Department of Immunology, Royal Free London NHS Foundation Trust, London, UK. [Mahlaoui N] Pediatric Immuno-Haematology and Rheumatology Unit, Necker Enfants Malades University Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France. French National Reference Center for Primary Immune Defciencies (CEREDIH), Necker Enfants Malades University Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France. [Obici L] Fondazione IRCCS Policlinico San Matteo, Centro Per Lo Studio E La Cura Delle Amiloidosi Sistemiche, Pavia, Italy. [Rossi Semerano L] Department of Pediatric Rheumatology, National Reference Centre for Auto-Infammatory Diseases and Amyloidosis of Infammatory Origin (CEREMAIA), Bicêtre Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Le Kremlin Bicêtre, France. [Lachmann H] Division of Medicine, National Amyloidosis Centre, University College London, London, UK. [Soler Palacin P] Unitat de Patologia Infecciosa i Immunodeficiències de Pediatria, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Jefrey Modell Diagnostic and Research Center for Primary Immunodefciencies, Barcelona, Spain, Vall d'Hebron Barcelona Hospital Campus, Muskan, Israni, Eliska, Alderson, Nizar, Mahlaoui, Laura, Obici, Linda, Rossi-Semerano, Helen, Lachmann, Mojca Zajc, Avramovič, Aurelien, Guffroy, Virgil, Dalm, Rachel, Rimmer, Leire, Soli, Carlota, Villar, Andrew R., Gennery, Stephanie, Skeffington, Julia, Nordin, Klaus, Warnatz, Anne-Sophie, Korganow, Jordi, Antón, Marco, Cattalini, Stefan, Berg, Pere, Soler-Palacin, Mari Campbell, &, Siobhan O., Burn, The Esid Clinical Working Party, &, The Ern Rita Transition Working Group, Consortium, Gardulf, Ann, Sediva, Anna, Soler-Palacín, Pere, Hauck, Fabian, Meyts, Isabelle, Haerynck, Filomeen, Pac, Malgorzata, Velcheva, Margarita, Jandus, Peter, Pergent, Martine, Carrabba, Maria, Neven, Bénédicte, Null, Null, Gonzalez-Granado, Luis Ignacio, Alataki-Papadopoulou, Efimia, Elfeky, Reem, Kelečić, Jadranka, Van Der Werff Ten Bosch, Jutte, Amoura, Zahir, Friman, Vanda, Heilmann, Carsten, Conlan, Niall, Aalto, Kristiina, Sanchez-Manubens, Judith, Sabato, Vito, Seppänen, Mikko, Solanich, Xavier, Insalaco, Antonella, Zeuner, Rainald, Tommasini, Alberto, Naumova, Elissaveta, Blattmann, Claudia, Slatter, Mary, Litzman, Jiří, Philippet, Pierre, Candotti, Fabio, Ekwall, Olov, Kralickova, Pavlina, Seidel, Marku, Canessa, Clementina, Schrijvers, Rik, Prescott, Natasha, Holzer, Ursula, Carreras, Carmen, Kanariou, Maria, Jeseňák, Miloš, Pitsios, Constantino, Devlin, Lisa, Arkwright, Peter, Wulffraat, Nico, Papadopoulou, Charalampia, Baselli, Lucia, Dellepiane, Rosa Maria, Savic, Sinisa, Brodszki, Nichola, Alsina, Laia, Suarez, Felipe, Moschese, Viviana, Mogensen, Trine Hyrup, Ludviksson, Bjorn Runar, Mcdermott, Elizabeth, Fritsch-Stork, Ruth, Barzaghi, Federica, Capilna, Brindusa, Folkers, Marina, Keogan, Mary, Niehues, Tim, Ogunjimi, Benson, Koliou, Maria, Lefèvre, Guillaume, Jolles, Stephen, Méndez-Echevarría, Ana, Bernatowska, Ewa, Hague, Rosie, Goffard, Jean-Christophe, Gilliaux, Olivier, Faust, Saul, Luck, Patricia, Wouters, Carine, Elcombe, Suzanne, Holzinger, Dirk, Santamaria, Manuel, Hanitsch, Leif, Brogan, Paul, Herlin, Troel, Von Bernuth, Horst, Fabio, Giovanna, Hentgen, Véronique, Marquart, Hanne, Da Silva, Susana Lope, Katzenstein, Terese, Masmas, Tania Nicole, Neth, Olaf, Dehoorne, Joke, Amin, Tania, Hayward, Georgia

Πηγή: J Clin Immunol
Scientia
Scientia. Dipòsit d'Informació Digital del Departament de Salut
instname
JOURNAL OF CLINICAL IMMUNOLOGY
ESID Clinical Working Party & RITA-ERN Transition Working Group Consortium 2025, 'Recommendations for Transitioning Young People with Primary Immunodeficiency Disorders and Autoinflammatory Diseases to Adult Care', Journal of Clinical Immunology, vol. 45, no. 1, 57. https://doi.org/10.1007/s10875-024-01838-y

Θεματικοί όροι: INBORN-ERRORS, Continuïtat assistencial, inborn errors of immunity, Delphi Technique, CHILDHOOD, CHILDREN, 0302 clinical medicine, Transition, autoinflammatory diseases, primary immunodeficiency disorders, recommendations, autoinflammatory disease, QUALITY-OF-LIFE, Assistència sanitària, Surveys and Questionnaires, ADOLESCENTS, READINESS, Medicine and Health Sciences, PROGRAM, PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::psicología social::procesos de grupo::consenso, DENOMINACIONES DE GRUPOS::personas::Grupos de Edad::adulto::adulto joven, TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::continuidad de la atención al paciente::tránsito a la atención adulta, EXPERIENCES, Síndromes de deficiència immunitària - Tractament, 3. Good health, 3204 Immunology, Otros calificadores::Otros calificadores::/terapia, 1107 Immunology, ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Continuity of Patient Care::Transition to Adult Care, DISEASES::Immune System Diseases::Immunologic Deficiency Syndromes, Transition to Adult Care/standards, Adult, Transition to Adult Care, Consensus, Adolescent, Primary Immunodeficiency Diseases, Immunology, Decisió de grup, NAMED GROUPS::Persons::Age Groups::Adult::Young Adult, Other subheadings::Other subheadings::/therapy, ERN RITA Transition Working Group Consortium, PATIENT, Enquestes, TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::técnicas de investigación::métodos epidemiológicos::recopilación de datos::encuestas y cuestionarios, Young Adult, 03 medical and health sciences, Immunologic Deficiency Syndromes/therapy, Humans, primary immunodeficiency disorder, ESID Clinical Working Party, PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Psychology, Social::Group Processes::Consensus, Surveys and Questionnaires [MeSH], Adolescent [MeSH], Adult [MeSH], Humans [MeSH], Transition to Adult Care/standards [MeSH], Immunologic Deficiency Syndromes/therapy [MeSH], Research, Young Adult [MeSH], Primary Immunodeficiency Diseases/diagnosis [MeSH], Primary Immunodeficiency Diseases/therapy [MeSH], Delphi Technique [MeSH], Consensus [MeSH], ENFERMEDADES::enfermedades del sistema inmune::síndromes de inmunodeficiencia, ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Data Collection::Surveys and Questionnaires, Immunologic Deficiency Syndromes, Primary Immunodeficiency Diseases/therapy, HEALTH-CARE, Joves adults

Περιγραφή αρχείου: application/pdf; ELETTRONICO; text; pdf

Σύνδεσμος πρόσβασης: https://pubmed.ncbi.nlm.nih.gov/39690292
https://hdl.handle.net/11351/12489
https://hdl.handle.net/11368/3100479
https://link.springer.com/article/10.1007/s10875-024-01838-y
https://pure.eur.nl/en/publications/c2cbc9fb-d6c3-43b5-a12c-2720596f188a
https://doi.org/10.1007/s10875-024-01838-y
https://lirias.kuleuven.be/handle/20.500.12942/764658
https://doi.org/10.1007/s10875-024-01838-y
https://hdl.handle.net/11368/3100479
https://doi.org/10.1007/s10875-024-01838-y
https://link.springer.com/article/10.1007/s10875-024-01838-y
https://repository.publisso.de/resource/frl:6518394
http://doi.org/10.1007/s10875-024-01838-y
https://biblio.ugent.be/publication/01JPANV1HR78CXV3H3NSCQMEFV
http://hdl.handle.net/1854/LU-01JPANV1HR78CXV3H3NSCQMEFV
https://biblio.ugent.be/publication/01JPANV1HR78CXV3H3NSCQMEFV/file/01JPANV8GEWRAF7N04GS3PDG2W
http://www.scopus.com/inward/record.url?scp=85212684844&partnerID=8YFLogxK
https://pure.au.dk/portal/en/publications/dbbd43bd-4f49-4e5e-943f-6a66868cf62d
https://doi.org/10.1007/s10875-024-01838-y

Delphi consensus on the transition from paediatric to adult epilepsy care ; Consenso Delphi sobre la transición de pediatría a adulto en las consultas de epilepsia

Συγγραφείς: Poza, Juan Jose, Becerra, Juan Luis, Eirís, Jesus, Fons, Carmen, Rojas Benites, Mayra Janett, Toledo, Manuel

Συνεισφορές: Institut Català de la Salut, Toledo M Unitat d’Epilèpsia, Servei de Neurologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Poza JJ Servicio de Neurología, Hospital Universitario Donostia, San Sebastián, Spain. Becerra JL Unidad de Epilepsia, Servicio de Neurología, Hospital Universitario Germans Trias i Pujol, Badalona, Spain. Eirís J Unidad de Neurología Pediátrica, Complejo Hospitalario Universitario, Santiago de Compostela, Spain. Fons C Servicio de Neurología Pediátrica, Hospital Universitario Sant Joan de Déu, Barcelona, Spain. Ruiz-Falcó Rojas ML Servicio de Neuropediatría, Hospital Universitario Infantil Niño Jesús, Madrid, Spain, Vall d'Hebron Barcelona Hospital Campus

Πηγή: Scientia

Θεματικοί όροι: Epilèpsia, Decisió de grup, Atenció primària pediàtrica, INFORMATION SCIENCE::Information Science::Systems Analysis::Delphi Technique, ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Continuity of Patient Care::Transition to Adult Care, DISEASES::Nervous System Diseases::Central Nervous System Diseases::Brain Diseases::Epilepsy, CIENCIA DE LA INFORMACIÓN::Ciencias de la información::análisis de sistemas::técnica Delfos, TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::continuidad de la atención al paciente::tránsito a la atención adulta, ENFERMEDADES::enfermedades del sistema nervioso::enfermedades del sistema nervioso central::enfermedades cerebrales::epilepsia

Περιγραφή αρχείου: application/pdf

Relation: Neurology Perspectives;4(2); https://doi.org/10.1016/j.neurop.2024.100155; https://hdl.handle.net/11351/11324

Διαθεσιμότητα: https://hdl.handle.net/11351/11324
https://doi.org/10.1016/j.neurop.2024.100155

Benefits of Paediatric to Adult Transition Programme in Inflammatory Bowel Disease: The BUTTERFLY Study of GETECCU and SEGHNP

Συγγραφείς: Rubín de Célix, Cristina, Pujol Muncunill, Gemma, Velasco Rodríguez-Belvís, Marta, MARTÍN-MASOT, RAFAEL, Monfort Miquel, David, Martín de Carpi, Javier, Palomino Pérez, Laura María

Συνεισφορές: Rubín de Célix C Gastroenterology Department, Hospital Universitario de La Princesa, Instituto de Investigación Sanitaria Princesa, Universidad Autónoma de Madrid, Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas, Madrid, Spain. Martín-de-Carpi J, Pujol-Muncunill G Department of Paediatric Gastroenterology, Hepatology and Nutrition, Hospital Sant Joan de Déu, Barcelona, Spain. María Palomino L, Velasco Rodríguez-Belvís M Paediatric Gastroenterology and Nutrition Department, Hospital Infantil Universitario Niño Jesús, Madrid, Spain. Martín-Masot R Paediatric Gastroenterology and Nutrition Unit, Hospital Regional Universitario de Málaga, Biomedical Re-search Institute of Málaga, Málaga, Spain. Monfort Miquel D Servei de Gastroenterologia, Hospital de Terrassa, Consorci Sanitari de Terrassa, Terrassa, Spain, Consorci Sanitari de Terrassa

Πηγή: Scientia

Θεματικοί όροι: Adolescents, Adults, Intestins - Inflamació, DISEASES::Digestive System Diseases::Gastrointestinal Diseases::Gastroenteritis::Inflammatory Bowel Diseases, ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Continuity of Patient Care::Transition to Adult Care, AND EQUIPMENT::Therapeutics::Patient Care::Continuity of Patient Care::Transitional Care, ENFERMEDADES::enfermedades del sistema digestivo::enfermedades gastrointestinales::gastroenteritis::enfermedad inflamatoria intestinal, TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::continuidad de la atención al paciente::cuidados de transición, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::continuidad de la atención al paciente::tránsito a la atención adulta

Περιγραφή αρχείου: application/pdf

Relation: Journal of Clinical Medicine;12(14); https://doi.org/10.3390/jcm12144813; https://hdl.handle.net/11351/10162

Διαθεσιμότητα: https://hdl.handle.net/11351/10162
https://doi.org/10.3390/jcm12144813